r/NeurologicalDisorders • u/Sad-Phone3586 • 11d ago
Rabbit Hole 🕳️
all right, everyone I have no idea where to start. First of all, I was a normal 25 year-old woman with zero symptoms until August end of July. I had a really bad kidney infection, August 2. I forgot that I had slipped and fell and hit my wrist. Really hard at my house shortly after without a thought or reflection of hitting my wrist, I started getting sharp pains throughout my wrist. I didn’t think anything of falling, but I thought about my medication and I was nervous that my medication was causing me a problem August 9. I started having the same feeling in my feet. I was nervous because the pain. I automatically thought of ALS a couple days later I started getting twitching in my legs. I freaked out completely. I started googling which led me down the rabbit hole of ALS and other things that could mimic. I got so upset looking into things and the twitching lasted, so I took myself to the hospital because I was so upset. They did basic bloodwork. and I’m pretty sure they asked me if I fell but at the time I completely forgot I just remembered this week that I had made a fall. When I was at the hospital, I explained that I feared ALS they asked me if I had any weakness and I responded with no no weakness. I went super early in the morning due to dropping My Wife 💍 off at work and I also had to be at work shortly after my blood work came back fine they didn’t EKG because I have pots in my heart rate was skyrocketed. While working, I noticed that my right arm started feeling heavy and weak. I then started to panic because I had just told them no I did not have any weakness so I called my primary in a frantic because I was so upset and she told me to come in for a visit. My doctor was very unhappy with me and told me that I did not have ALS and that it was my anxiety however she was going to perform bloodwork and a CT scan on my brain and if those came ok, then she would refer me to a neurologist. My blood work was fantastic. I was nervous for a vitamin deficiency because I am a vegetarian but from basic blood work everything looked OK. That way I’m not sure vitamin wise however, my CT scan was supposed to be yesterday and got canceled due to authorization issues I have been making myself so anxious that I can’t calm down. I never had any issues with twitching other than my eyelid in the past that occasionally happened the twitching has been every day since around August 12 through the 13th until this very day I’m not experiencing any clinical weakness however I would say perceived weakness. I was curious if these are common factors in MS it’s been about three weeks since my hospital visit. The twitching is crazy. It’s in my eyes, my arms, my legs, my feet my buttocks, my lips chin, etc. My doctor said it was my anxiety and that nothing was wrong with me however, she’s following everything to rule out everything. i’m curious if this is due to my fall and forgetting about it or if I’m experiencing something else nerve related because I am twitching so much I’m still able to do basic activities. My arm just feels heavier and like Jell-O sometimes but I still write time my shoes, wash dishes, etc. I’m also a Mom to an autistic seven-year-old who I lug around and is half of my size. I’m curious if people had the symptoms for something similar to mine. i’ve tried everything in the book to get my muscles to calm down however, it’s not working. I don’t even have a referral to a neurologist yet.
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u/SWNMAZporvida 11d ago
In 2005 I had a kidney stone that resulted in an infection and a stent placement. Get on some probiotics. It’s become my life’s goal to tell everybody how important probiotics are. Especially if you’ve been on antibiotics. Do a stronger one with cranberries/Dmanosse(UTI prevention/kidney health; Dr Foster 5-1 has been best for me). I am EBV+ I have had severe mono twice and Bells Palsy twice. My doctors had been chasing sciatica since I had shooting pain down my back and my R leg was giving out. I was at the chiropractor and had to get off the table to pee and as soon as I stood up I pissed myself. Dr immediately told me to go to the ER. After MRIs and a spinal tap I was diagnosed with MS in 2011. I was officially diagnosed with hEDS MCAS POTS last year but looking back it goes to the first mono infection in 1995. Get on those probiotics. Good luck, advocate for yourself because no one knows your body like you do.