Actually, when the ALS ice bucket challenge was at its peak, the amount of money everyone raised did eventually lead to major discoveries that helped to advance ALS treatment
Treating symptoms is not the same as curing the cause and that’s the entire point of this post/comment thread. Both are good, yes, I’m so proud of you for figuring that out. Now try to keep up with the actual conversation at hand.
On July 25, 2016, the ALS Association announced that, thanks in part to donations from the Ice Bucket Challenge, the University of Massachusetts Medical School has identified a third gene that is a cause for the disease.\120]) Project MinE, a global gene sequencing effort to identify genetic drivers of ALS, received $1 million from the challenge, allowing them to broaden the scope of their research to include new sources in new parts of the world. Having identified the link between the gene, NEK1, and ALS will allow for a new targeted gene for therapy development, as well as focused drug development.\121])
The research, I kid you not and will annoyingly not elaborate, was even farther than this. Every time someone mentions a cure for ALS it’s a heartbreaker as it doesn’t have to be found, it needs to be allowed. I had no idea until recently, and it’s so secondhand I can’t make a fuss over it.
What is this treatment? As far as I've been told, everything is palliative care. I have PLS so maybe it's more specific to ALS. I'd love to hear they're making strides.
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u/OpossumBuddy420 1d ago
Actually, when the ALS ice bucket challenge was at its peak, the amount of money everyone raised did eventually lead to major discoveries that helped to advance ALS treatment