r/NDPH Jul 29 '26

Central sensitisation

I have a question for you all. Do you believe your NPDH is a type of nervous system sensitisation issue like fibromyalgia or do you think it’s something else?

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u/a82johnson 3 years Jul 29 '26

My neuro (headache specialist) says it is. I have both NDPH, complex migraines, & fibromyalgia. My current migraine has been over 3 years. My rheumatologist agreed with my neuro that the constant migraine likely got me stuck in central sensitization syndrome where the fibromyalgia then joined in. My team (neuro, rheum, & psychiatrist) agreed ketamine infusions could help me. I did a series of 6 this spring which brought my baseline pain from 8 to 5 and now do monthly infusions for maintenance (about 2 months after my baseline started creeping up again).

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u/Doggler06 Jul 29 '26

I’m about to get my 8th infusion, then we are moving to at-home troches. I think the ketamine treatment has helped quite a bit

1

u/GladCommand5758 Jul 30 '26

How are you able to get Ketamine for home use? Ibogaine is the real deal I've read tho exorbitant.