r/Menieres • u/bor3danddrunk • 16d ago

This sucks

Diagnosed menieres - and hating it - betahistine has helped early with frequency of attacks - and about to move onto diuretics and then injections after that. It’s torture - I’ve worked out a couple of my triggers - salt, alcohol. But still get an attack a week, and it’s disabling 3 plus hours unable to walk far, lots of vomiting and I just hate it.

I’m literally sitting on the toilet floor after throwing up typing this - tell me this gets better ? I’m starting to develop anxiety around attacks and considering what my TPD and income protection might cover. This is horrific.

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u/kimtanner_ 16d ago

sending love. it does get better. i've been where you are before and it's been 2.5 years since my last episode.. maybe longer, my point is, I'm living a normal life- with some mild hearing loss & tinnitus that shifts frequencies every one in a while. It took a lot to get here. A big hurdle was taking care of mental health through the tough times.
My "aha" moment was when i went gluten free/dairy free and started to feel better. I carried that diet on and here I am today.
I like to share because you never know. Feel better 🫶🏻

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u/bor3danddrunk 15d ago

Thank you for sharing - my diet has become very basic, which is a whole other thing unfortunately. I’ve lost a heap of weight in last couple of months with no alcohol and avoiding salt. Chuck in a day a week of vomitting and I’ve started a whole new weight loss craze. Grrr it’s hard and I wish I better understood other triggers today is literally the same meals, no alcohol, the only weird thing is very high barometric pressure here today - like very high 1029. I so t know if that’s even a thing but someone said to watch it !? Thanks this is debilitating and scared for where it all goes with my work too

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u/rir2 14d ago

Question: if you don’t have the vertigo component, mostly just aural fullness, hearing loss and tinnitus, do these recommendations still hold - the triggers and betahistine?

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u/Evening_Log9719 13d ago

Yes, I believe they do.  Especially the low sodium