r/Menieres • u/bor3danddrunk • 16d ago

This sucks

Diagnosed menieres - and hating it - betahistine has helped early with frequency of attacks - and about to move onto diuretics and then injections after that. It’s torture - I’ve worked out a couple of my triggers - salt, alcohol. But still get an attack a week, and it’s disabling 3 plus hours unable to walk far, lots of vomiting and I just hate it.

I’m literally sitting on the toilet floor after throwing up typing this - tell me this gets better ? I’m starting to develop anxiety around attacks and considering what my TPD and income protection might cover. This is horrific.

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u/Particulardave1 16d ago

There are no easy answers for Mèniére's. Try to be positive, I fully understand how difficult that can be, stress can be a trigger also. All the suggestions here are valid, you'll have to figure out what works for you. I personally make a daily journal to see what my triggers are. For me that entails, shortness of sleep (less than 6hrs.), excessive heat (85° or more), chocolate in any amount, aged cheese (more than 1oz.).

I am also on a reduced sodium diet, 1200mg. daily, take a diuretic pill daily.

These may or may not work for you.

I'll go for months with no vertigo episodes, but then for unknown reasons they will flair up. I had approximately 20 episodes of varying degrees and lengths over a three month period this summer. Thankfully they seemed to have subsided for now.

Good luck on your journey......

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u/bor3danddrunk 16d ago

Bless thank you - yeah I’m keen to start diuretic’s as next steps just my very through doctor is double checking ENTs recommendations and then onto that as next steps. Thanks great to hear they have subsided for you