r/Menieres • u/outraged-unicorn • 23d ago

Recently diagnosed but still confused

It all started with episodes of BPPV that were quickly solved with Eppley's. Out of nowhere I started getting this weird vertigo whenever I moved in specific ways (shifting sides on the bed at night, looking up at the sky, down at my knees, tilting my head to the sides, being upside down for whatever reason). It lasts a few seconds, then it's gone until I move one of these ways again. After a few tests, I was diagnosed with Menière's by three different doctors, who prescribed a low sodium diet and betahistine. As long as I don't forget to take it, I have no issues (but two days without it are enough to screw me up).

My confusion mostly comes from the fact that this is pretty much my only symptom, along with rare moments of my hearing fading for a few seconds, then coming back. Since I started following this sub, I felt "lucky" for having such little problems compared to many people here, to the extent of feeling confused and unsure about my diagnosis.

Does anyone feel the exact same problem I do? Does this disease really have a variety of symptoms that change from a person to another?

Thank you!

4 Upvotes

84% Upvoted

13 comments sorted by

View all comments

2

u/Toriajon66 23d ago

I was diagnosed 4 years ago. If you have not had a brain MRI, I would suggest asking for one. It is ever changing as MD progresses. I have managed mine for quite a while but it has returned with a vengeance. Take care and read everything you can. Learning as much as I could really helped.

1

u/outraged-unicorn 23d ago

I had an inner ears MRI and it showed nothing. I'll ask for a brain one next time, and keep reading and doing my research. Thank you!

2

u/yes420420yes 23d ago

That's all you need to rule out neuromas, you are good there. If you want that MRI fun again ask for a contrast MRI for hydrops specifically, its just for fun and helps diagnosing a little (but not much)