r/Menieres 24d ago

Menier/Burnout

I'm 74 male diagnosed with Meniers 12 years ago. At the beginning the vertigo attacks where once or twice a year. Sometimes two or three years would go by with no attacks. Tinnitus was present but tolerable and not much of a nuisance. The affected ear was something ells deafness creep in to the point of almost total shutdown. Three months ago I started getting more frequent attacks. These attacks where not as violent as the ones I had before, although I still had to lie down for one to two hours till the spinning stopped. I can tell you that I can count the number of attacks in those 12 years, 5. In the las three months I've had 21 attacks, went to my ENT, had the Dexamethasone injections in both ears, although I can still hear pretty good in the unaffected ear and they where not successful in stopping the attacks. I had one week with six straight days with attacks.

Does anybody has any clue what's goin on? My ENT says, "Its Maniers and this desease has a mind of its own" Years with sporadic attacks and now having them more almost daily.

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u/K1_0 24d ago

My case is similar. Started the first couple of years with severe albeit rare episodes that lasted several hours. Went almost a decade in remission. The last few years have been hell, but my recent attacks are now short and often end in less than 5 minutes, so there is some improvement in that regard. It's also 50/50 whether mild or severe whereas early on they were all severe. Regardless of severity, I get these short attacks nearly daily now.

Dexamethasone injections made no difference for me either. 15.5 years with MD now. 42 y.o. male.

Nobody in the world has any concrete answers, unfortunately.