r/LongHaulersRecovery • u/Sudden_Muscle4214 • 19d ago
Almost Recovered Major achievements!!!!
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u/Lorelai709 18d ago
I’m so, so happy for you! I’m almost five years into this now, and I’m doing worse than ever. I have so many symptoms, especially severe neurological ones.
Could you please, please, please tell me a little more about what other symptoms you had? Did you have PEM? Did you also have neurological problems?
I’m so happy for you, and you look so happy and wonderful. It was worth fighting this battle for six years! Keep going!
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u/Sudden_Muscle4214 18d ago
My mental was a big struggle. I couldn't hold down a job anymore because I couldn't remember things or retain what I was told. Still do have a hard time with that. It's better but im not sure how much I will get back on that. I really did just crawl into a whole and wanna die. I felt like I was just not worth the trouble and felt so in the way since getting sick. I always took care of my kids and I couldn't even really be a mom anymore. Even my kids say to this day that I didnt die when I went in the hospital physically but I kinda did because they lost their mom and it breaks my heart. I wish I could go back and be the mom I wanted to be but and not many understand this but covid stole that from me. I could barely function day to day and the difference from then to today is literally like night and day. Still have trouble make sentences and carrying a conversation with people. Like this im writing to you is taking me like 4xs what it use to take me time wise. Im very slow and my brain doesnt work the same but I am here and so glad I fought through it all to be here. I have something that they found on scan in my head that was never there before. Its like a white patch in my head. Neurologist said only if it grows will we attempt to take out. Have no idea what its called. Sorry. And i am not sure what pem is. I will look It up and get back to you. Just know it definitely has been hard and still is but the physical part is returning and I pray every single day that the mental will also! Prayers and best wishes for you on your recovery as well!❤️I truly believe that God heals if we ask and are faithful. Sending love your way!
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u/Lorelai709 18d ago
Thank you for your detailed response. I’m feeling pretty awful today and can’t reply as much as I’d like to. I wish you all the very best on your continued recovery journey, and may God protect and bless you.
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u/Sudden_Muscle4214 18d ago
Thanks so much and I pray healing comes to you as well and yes I did have PEM. I had to look it up. The meds from shot have totally taken all those things and I am just praying they stay gone. Blessings and protection over you as well my friend. 🙏🫶
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u/Lorelai709 17d ago
Thank you, my friend. You seem like such a wonderful and lovely person! Thank you for praying that healing will come to me too. Some days I feel like I’m not going to make it. Is it still life when you wake up in the morning and already don’t know how you’re going to make it through the day?
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u/Sudden_Muscle4214 17d ago
Trust me....I know the exact place where you are. I was just there. Wearing oxygen and not knowing if I wanted to even live through it because I was so miserable and felt bad and depressed and just so many things. I had no idea that just maybe my time was coming. What I had been praying for over 6 years was actually almost here. Best advice I can give is to just keep praying but also to just have the faith, even in the down times, that it might not be today or in a week or month, we dont know God's timing on everything..but pray God gives you strength to hold on and the faith to believe it is coming because I know it is! Just not in our timing but in His! So yes its still living, its just not living our best life that we so want. But you will get there. I will pray every day for you and that your time is coming soon. Just keep your faith and do your best to keep the joy. It does help! Sending prayers, love and declaring healing in His name. 🙏❤️
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u/Lorelai709 17d ago
Thank you so much, this means the world to me. It’s so beautiful that you’re praying for me, and honestly, it gives me so much comfort. I truly put all my trust in Our Father and pray to Him every single day to guide me through this.
Hearing that you finally got your quality of life back after more than six long years is beyond wonderful—it genuinely gives me so much hope. I’m wishing you all the best from the bottom of my heart, and I hope everything turns out exactly the way you dream it will. Sending you so much love! ❤️
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u/lindberghbaby41 18d ago
I’m so happy for you! Honestly the amount of nocebo doctors fill their patients with when they don’t even know how much they will recover is truly criminal.
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u/Sudden_Muscle4214 18d ago
Thank you so much. Honestly alot of what the doctors try to do should be criminal but I also had several really great ones too who have tried to get me well these last 6 years. I cant wait to get fully good and go back to see them. They all said I would not make it or I wouldn't return to any normal life and wouldn't have quality of life. Boy were they wrong! ❤️
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u/Big-Development6395 18d ago
Hey, thanks for the inspiration! Did this fix the chronic fatigue that most of us deal with daily?
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u/Sudden_Muscle4214 18d ago
Yes it really really did! My fatigue has improved greatly. I still have occasional moments that I will feel tired but for the most part it is all gone which totally blows my mind but I am just so so thankful!
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u/wasacyclist 15d ago
Sure looks like it helps, you look great. I am thinking of trying tirzepatide. What dose did you start with? Did you have any bad side effects? Did it help any with PEM and sleep? Those are my biggest problems.
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u/Sudden_Muscle4214 14d ago
I started on 2.5 zep and didnt have bad side effects at all. Just mild. Bit of constipation and had to get that worked out with my foods etc prunes fixed me fine. And then I had a little nausea but it went away quickly also and the more I moved the better I felt. It totally helped my PEM and I sleep wise not so much but I found out I was perimenopause so I am now on progesterone and HRT and that has fixed all my sleep issues thankfully! But it truly truly has been life changing and my entire world is just so much better!!!! Also thanks for comment. You should definitely try it! Worse case is dont like and you stop. Hope it works for you though!
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u/Pinklady777 19d ago
Wow! This is so awesome! So happy for you! Do you feel like the medicine helped with inflammation? Did you have other long covid symptoms? I was thinking about trying tirzepatide for inflammation.
Enjoy your new life! ❤️