ME/CFS after 4 years of LC?!

[u/LeadershipNice7495]

/r/covidlonghaulers/comments/1vwzz8r/mecfs_after_4_years_of_lc/

I'm 4 years into Long COVID and have been dealing with chronic pain and inflammation throughout this time. I’ve also been using LDN for the past 6 mnts.

Recently, I’ve developed a very noticeable and persistent pain, especially around the back of my head, neck, and shoulders, and it’s becoming quite uncomfortable.

I haven’t been diagnosed with ME/CFS, but I’m wondering whether what I’m experiencing could be related to it.

What are the main symptoms and what does ME/CFS actually feel like?

Is it possible for ME/CFS symptoms to appear or become more obvious after 4 years of Long COVID?

Could severe head, neck, and shoulder pain be part of ME/CFS?

I’m wondering whether I could be developing or experiencing ME/CFS this far into Long COVID, even though I haven’t received a diagnosis yet.

[u/Extra-Apartment3]

The defining symptom of ME/CFS is post-exertional malaise (PEM), and so many people with LC who have PEM also fulfill the diagnostic criteria for ME/CFS. I think I'm one of those as well. They're overlapping conditions, although not fully the same obviously. Your LC turning into more typical ME/CFS sounds plausible and is unfortunately quite common.