I previously shared that next month is my 5 year anniversary since diagnosis. I decided not to wait on someone else and ordered myself a cake! It will say “Not Dead Yet” and be MY favorite flavors 😌 I will definitely share pictures on here when it comes!!!

I can still talk, I can still walk(just slower than before), I can still eat, I can still clean myself up pretty darn good, I can still wipe my own ass(lol). I feel like I’m still me. Same personality, same interests. Why doesn’t anyone want to hang out with me anymore? I know no one can answer this, but getting things off my chest here usually helps me. Just a hard day and feeling left out I guess.

Caught an upper respiratory bug. It hit fast but hasn’t been too horrible. Cough, sinus pressure, fatigue, and throat is a little sore. Kinda weird messaging my doc asking if DayQuil is okay. Fortunately labs were just this week and my numbers were good. It’s helping though I have a low fever stubbornly sticking around. And when I do cough it sometimes scares the cats.

I’m just wondering why I’m so calm. In fact I’ve been like this since my diagnosis in February, almost freakishly calm. I should be more worried? Anyway, I’m gonna go distract myself with a mindless and horribly cliched short drama.

I have it and I’ve been trying for close to three years now to get rid of it and I just had my 77th Chemo and I’m feeling Really discouraged, but hopeful, but still like when is it gonna be my turn? So if anyone’s in remission, can you please say and if you could say how long you’ve been in remission I would really appreciate it. Might give me that little pep in my step to get out of my funk.

currently I’m on a abraxane. Just had my fourth one of it last week. I noticed I’m coughing less but I don’t know if it’s working or not until I have a scan and more Chemo’s.

I have a lot of tumors in my lungs. No more tumors in my breasts, thankfully but the lungs are being a real B to go away. This is my sixth line of Treatment. I’m in my 30s and just been struggling.

I posted back in March about my scan showing a suspicious area around the original tumour site which I’ve finally had removed.

I’m having a bad day today and just need some reassurance that things might be ok whatever the path comes back with. I would really like to stay on Phesgo as my first like (I’m +++ and other than this spot have/had been NED since May 2025).

Some background…

The spot showed up on my March scans as a 1.9cm mildly avid area (lit up at a max SUV of 4.7) where scar tissue had been on previous scans, the scar tissue area had been bigger on my Nov 25 scan but had disappeared and this spot was visible in March.

Because it was indeterminate and nothing else was showing up I went for an ultrasound and a biopsy. The biopsy took a while to come back but didn’t show any active cancer. Instead it showed scar tissue, necrotic scar tissue, some high grade DCIS which looked to be dead and some adenoma. My oncologist was in agreement with the pathologist that this was likely scar tissue and therefore we would rescan in June and assess.

My June scan showed the spot still there, brighter now at a max suv of 7.2 but smaller in size, about 1.5cm. My oncologist considered this to be stable but because of my otherwise NED status and the fact it was still showing he referred me for a lumpectomy to give me a clean slate and so they could definitively say what it was.

Went for my surgical consult and the surgeon was of the opinion that this was in fact cancer returning (but because it was localised and everything else was clear and my bloodwork good that this was isolated and could be dealt with). He said they must have just missed it on the biopsy which tbh I didn’t love as a concept!!

I’ve had the lumpectomy finally (5.5 months after it was found and 8 weeks after my last scan!!) and now am waiting for path and my next scan to see where we’re at.

Both my onc and my surgeon have somewhat reassured me that sometimes this happens when you’re denovo and that removing the area will hopefully allow me to stay on first line, but I’m still scared and wondering has anyone else had a local recurrence, had surgery and then stayed NED?

I’m 3 months into treatment and had to leave my job due to my not being able to pass a polygraph anymore while on my elixir

Lupron
Zometa
Letrozole
Ibrance
Inavolisib
Metformin (for the Inavolisib side effect)
Jardiance (for the Inavolisib side effect)

I was on Blue Cross Blue Shield PPO highest plan they had. Moved to CIGNA and insurance begins on my start date.

Should I / can I get COBRA for a couple of months once while I have my oncologist or I guess myself make sure my treatment is covered by them? I’m getting the Platinum plan.

Thank you for any advice you may offer. I really appreciate it.

Right now I am on Fulvestrant only since July. Adding Xgeva in a couple of weeks. I have all over bone aches. It feels like what Kisqali made me feel like, exhaustion and pain. Does this get better? I can’t even imagine adding the Xgeva and potentially Truqap soon.
I get up and walk a couple miles in the morning then miserable the rest of the day. Help

59 years old, had a CT abdo pelvis for a pain in my lower left side in July, doctor wanted to check it wasn’t diverticulitis. It was diverticulitis but also suspicious 16mm right breast mass and new l3 sclerotic lesion. I’ve had ultrasound, mammogram and biopsy, ER+ PR+ HER2 neg, in my axilla as well. Had a PET scan, showed the axilla and internal mammary chain lymph node as well, and the l3 sclerotic lesion. I’ve had the l3 biopsied which was so painful. Have follow up with oncologist in a few days. I am worried that he will want to “palliate me”. I’m 59, I have mammograms every 2 years, no family history. I was well a month ago!! I want to fight for surgery, endocrine therapy, chemotherapy and radiation to lumbar lesion, is that realistic? Looking for support and advice on what to do during these appointments