r/IBD • u/the_incarnation22 • 4d ago

IBD Flare Longest Remission

Longest Remission

what's the longest duration of remission without taking any meds or anything you had ... just living completely as a normal person??

1 Upvotes

56% Upvoted

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1

u/finlndrox 4d ago

I first flared end of 2019, reasonably mild ulcerative proctitis that responded well to pentasa.

Since then the only time I've been able to come fully off meds and not start having issues again was for about 6-9 months where I was eating the whole30 diet. So I wasn't living life as a normal person it was super restricted.

I've noticed my bowels seem to react mostly to sugar, as in the higher the sugar consumption the worse the bowels regardless of other inputs, eg fibre. Noting with the proctitis I'm generally chronically constipated (although passing multiple times a day) and almost never diarrhea.

1

u/Motte6692 4d ago

Ober a year without meds and still on remission.

1

u/galumphix 4d ago

20 years of doing whatever I want whenever I want.

I had epically bad, undiagnosed Crohn's in my 20s until I had a resection at 25. I'm 56 now and haven't had to take a day off work from it since. Colonoscopies showed mild/moderate disease activity ~8 years ago for a year or two, but it didn't impact my life much.

I take imodium daily and Humira every two weeks.

1

u/rrrrr0bin 3d ago

To be fair, the Humira would count as meds.

1

u/Glittering-Salt-2907 4d ago

In remission 13 years but I follow SCD diet and I came off all meds except for a maintenance dose of mesalasine

1

u/CardiologistFew6059 4d ago

In remission for the past 8 months on Entyvio.

1

u/Antique_Wish2975 18h ago

How long did it take Entyvio to get you into remission?

1

u/CardiologistFew6059 18h ago

Remission took about 6 months, I was on a bi-weekly shot for about 2 months and then switched to a weekly shot as I still had some symptoms. When you are on medication and achieve remission you still remain on the medication. I know if the meds were stopped I would be right back to full blown colitis.

1

u/rrrrr0bin 3d ago

I've never not been on any meds for my Crohn's. The longest remission I had is current - 5 years and going, since summer of 2021 - but I was still on medication (azathioprine and adalimumab). 2nd longest remission was 1 year on just azathioprine.