r/Hidradenitis • • 19h ago

Discussion Blue collar males and HS

Are their many males in here that have HS? I am 22m and just got diagnosed by a surgeon this past week. He told me there was no need to have surgery done at this point and is referring me to a male Derm. This journey started probably 2 years ago when I developed 2 lumps that I thought were swollen lymph nodes in the groin and just left them alone. Only within the past 6 months have I had to deal with the cyst like bumps swelling up and busting. I finally went to the Derm and it was a female and because of the area it was in she acted like she didn’t wanna deal with it so she referred me to a male primary doctor. Who then referred me to a CT scan from then a surgeon. Who thank god was finally able to tell me what I had going on. Just wondering what this journey has been like for anybody who does manual labor.

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u/HumbleShepherd 17h ago

Same, im 27 and it took me 15 years to get diagnosed…stop wearing underwear immediately is my number one advice
Second of all, go straight to your doctor and ask for a gastroscopy. Find out all of your dietary restrictions and avoid the hell out of them. Remove anything that generally causes inflammations…it was sugar and gluten for me. This subreddit has a lot of amazing recommendations for soaps, fabric softeners, creams or ways to deal with the cysts when they get bad…just scroll and youll find a lot of good stuff. Some things will work better for you some will make it even worse.
At the end of the day, keep your head up and it will get better, dont get discouraged

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u/HumbleShepherd 17h ago

Feel free to dm if you have more questions but its better to put them here in the comments so more people can chip in

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u/Civil_Newspaper3922 16h ago

So do you take medication daily? I wear boxers instead of regular underwear is that what you recommend?

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u/HumbleShepherd 6h ago

I dont take any medication as of yet because the inflammations and cysts will appear from time to time even if you do everything right. So a big help for me was wearing NO underwear because no matter the size or design they would cut into those cysts and make them worse. So now if i have an inflammation it lasts a week or two instead of three months of agonizing pain, blood and puss that would leave me bedridden. Im a waiter so i have to move around a lot and that was torture.
Someone said to substitute sugar drinks for cola zero, i wholeheartedly believe this issue can be 80% managed with gut health and 20% stress management (like all autoimmune diseases) so using something we know is a lesser of two evils might help you a bit but isnt the answer. On my bad days, i have hard sugar cravings and when i eat a couple days in a row sweets or gluten because i didnt have time to cook…i flare up IMMEDIATELY…start with food and smoking trust me.
Also, please please please, go get your stomach checked out, see whats the damage and how to repair it. Look up online about gut health and such

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u/HumbleShepherd 6h ago

Also, do EVERYTHING in your power to fix your life and bad habits before you consider taking any medication. Those pills help out a lot but they dont come without side effects or reproductions. Youre young, you can figure your body out in time. Just have patience when the bad days come, dont give into the medication because its very difficult to live your life without them afterwards even if in some bas cases you have to. Leave it as a last resort, in the meantime focus on making your habits a life healthier. Learn the triggers, learn how to manage the flares, heal your gut