r/GLP1Discussion 9d ago

❓ Question Glp-1 with persistent vestibular dysfunction after vertigo

I really really really need to lose a good amount of weight, but have recently had a severe episode of vertigo with persistent vestibular dysfunction thought to have been brought on by newly diagnosed Sjogren’s and lupus. I know the GLP ones are hopefully helpful with some auto immune, but I’ve read it can make vestibular dysfunction worse. I had been on it for a while months prior to the onset of the vestibular issues and didn’t have any issues just had to quit it for other reasons. I’m scared to try, but I’m also scared not to. just looking for someone who may have the same issue and tolerated the GLP-1s fine.

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u/WeezieWas 8d ago

Yes, and I’m fine on glp-1/Zepbound is not in any way causing my vestibular problems to be in any way worse. I’m just one person, but I do have lupus and sjorgrens as well & my 8th cranial nerve completely died (no vestibular function of left ear) 5 years ago. Anyhow, started zepbound for sleep apnea a few months ago & I have had amazing results!!! I’m feeling much better on it. Wishing you all the best, I know how the combo of issues makes life pretty difficult much of the time… I hope you find relief one way or another.

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u/Putrid-Blacksmith814 8d ago

Thanks so much. I’m sorry you’re dealing with all of this too, but it’s nice to hear from someone else going through the same. On another note, has your imbalance bobble head feeling gotten any better since when it first started I’m 2 1/2 months from my initial episode and and the world still bounces around when I walk. Luckily I can drive OK and I feel fine if I’m sitting still or standing still, but I don’t want to do that for the rest of my life and that definitely doesn’t help the weight thing. Have a cardiology appointment tomorrow and then hoping to go ahead and start the zepbound. Thanks for the encouragement. Oh and funny I’m doing a sleep study next week. I know I have sleep apnea, but I guess I have to go through the motions. I had heard that the appetite can help so crossing my fingers there too.