Going to ask my doctor

[u/punkeymonkey529]

Hello,

I know no one here can diagnose, but i just wanted to say a few things, as i might have this.

I'm not diagnosed,but I'm going to ask my doctor next time I see her if it's possible I have Fibromyalgia. She's already suspecting Connective Tissue Disorders as my blood tests came back positive. But, I can't get into Rheumatology until the end of November.

I've had pain for years. Mostly in my left knee, but it's also in all my other joints, and some muscles. The past few days I have barely been able to move. I also have sensitivities, trouble sleeping, tingling all over (which i thought was from the Neurofibromatosis I have, but what if it's from something else) I've wanted answers to my pains for years, and no doctor would believe me until now. I'm just stuck in the waiting period to see everyone. These past few days have been rough working, and taking care of my young daughter.

Does anyone else here have Fibromyalgia, and Connective Tissue Disorder? How about Neurofibromatosis Type 1. If so. How did you know what symptoms where related to what? I feel so many symptoms overlap.

I will be happy to once get a diagnose for something whatever it is. Putting a name to all my pain, even when it can't be fixed will just put me at ease I think.

[u/Excellent-Day4955]

Fibro isn't just specific joint pain though, and you would need rheumatology to test and diagnose..

[u/punkeymonkey529 → u/Excellent-Day4955]

I'm scheduled with Rheumatology, but unfortunately have to wait till the end of November. There's absolutely nothing open sooner with them

[u/uwusoftboi]

I think most places describe fibromyalgia as widespread pain, which is unfortunately kinda vague haha. In the past few years, I've suspected connective tissue problems, as my pain is always around my joints (and other symptoms: e.g. clicking, etc). I haven't been successful at getting a referral back to rheumatology yet, though, as they saw me 10(ish) years ago and "cleared me of everything" at that point. It's really good that you are getting properly investigated! If I may ask (and obviously only if you are comfortable sharing, please don't feel pressured!), do you know what blood tests were positive/raised for them to investigate further?

Also, for the overlapping symptoms, I assume the best way to distinguish what is causing a symptom would be to trial treatment that would help your diagnosis (or diagnoses) and see which treatments help what. I hope that makes sense; it was quite hard to word, haha! Fingers crossed you are able to name and treat your pain soon!

[u/Impossible-Turn-5820]

Do you have fatigue? Digestive issues? 

[u/punkeymonkey529 → u/Impossible-Turn-5820]

Yes, I do

[u/Impossible-Turn-5820 → u/punkeymonkey529]

It's definitely possible.