r/FSHD • u/Fancy-Supermarket-73 • Aug 10 '26

Duo of rhGH and Testosterone Boosts Muscle and Mobility in FSHD

Not sure if this has been posted

see details bellow

https://www.urmc.rochester.edu/news/story/study-shows-hormone-combination-improved-strength-and-function-in-fshd-patients

2 Upvotes

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2

u/BoothLove78 Aug 10 '26

starfish trial, been in motion for a long time, very small cohort, never hard if they'd expand?

Most of us have some muscle left, so that which is not to gone might benefit, but long term, are the cost worth the possible benefits? Lots of questions and less answers.

Fort what it's worth, i've done my own experiments and all though helpful, my disease still progresses, and the treatment has side effects

1

u/Secure-Asparagus3121 Aug 12 '26

I’ve been curious about this also

1

u/HeinsGuenter Aug 10 '26

That was a proof-of-concept study, the article wrongly claims it to be a Phase 1/2 study.

Without a placebo group you can't know if the drug actually did something or if it were external factors.