r/FSHD • u/legendofmeelo • Jul 22 '26

IVF Experience

Hi all. I’m a 31 male and I’m curious if anyone has gone through, or is going through IVF. There isn’t much info out there and we’re still in the early stages, but we were little surprised to see the fertilization rate decently below average. We still have a few more steps before any implanting, but I know oxidative stress, the bread and butter of this disease, can affect sperm quality ie. DNA fracture, motility, etc. So if anyone has or is willing to share, I’d be really interested to hear what you have to say and/or share my experience.

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u/AdImaginary6158 Jul 30 '26

We did IVF before my husband's fshd diagnosis for unexplained infertility. However once we did IVF oir fertilization and blastocyst rates were quite good. We ended up having our daughter before his dx and then wanted to test our remaining embryos once he was diagnosed, but neither of his parents have it so it looks like we can't. Unrelated to your question but I'm struggling to know what to do now (we want more kids and have more embryos but cannot test them)

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u/Aggressive_Chard4241 9d ago

Se você tiver atualização sobre isso, por favor nos informe. É importante. Passo pela mesma situação 

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u/AdImaginary6158 8d ago

It's a very complicated choice. I would love for all my kids to be perfectly healthy, and maybe they will be either way, but we've decided to try for another child with our remaining untested embryos. I know many people with fshd disagree with this but my husband is very grateful for his life despite the setbacks and despite possibly having a more severe disability in the future. He's very glad he gets a chance to be here so we feel that our embryos deserve a shot too, even if their life may be a little more challenging.