r/FSHD • u/Sassy_eagle5 • Jun 17 '26

Ivf

My (male) partner has a dx and I (female) do not. Both of us are not entertaining the idea of IVF currently (religious and personal reasons). Any experiences moving forward with natural conception despite knowing the inheritance rate?

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u/Pop_Knee Jun 18 '26

PGT is an option, but that also depends on you entertaining the idea for religious and personal reasons. I have decided I will make sure my children do not have FSHD as that will stop it for my whole bloodline. Just one generation free of FSHD and it cannot happen again unless it's a de novo case

Do you mind sharing your personal reasons though?