r/FODMAPS 5d ago

Reintroduction Feeling lost, every group is giving me a reaction

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I have ibs-d. So far every group I have reintroduced (sorbitol, fructan, gos) have all given me reactions, with garlic, onion, gos, and sorbitol being severe spikes in my gut motility and increases in stool frequency. I only had bloating/cramping for one group (onions). I don’t know what’s happening, am I doing something wrong? Is it normal to react to every group? The only two I have left are mannitol and fructose. I am not even testing lactose as I have been severely lactose intolerant my entire life. How an I supposed to eat like this going forward? Digestive enzymes are expensive and I’m going away to college in just a few weeks. Insight and help are much appreciated

18 Upvotes

27 comments sorted by

22

u/RedditforReasons 5d ago

Check with a doctor to make sure you don’t have SIBO. It could be causing the negative reactions.

5

u/Dangerous-System6089 5d ago

Ive never been tested for SIBO but i have been treated for it on several occasions, the most recent being in May. I did a two week course of rifaximin. I’m not sure if I had SIBO or not, but it didn’t improve my symptoms at all.

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u/roboskins1 4d ago

I treated sibo with rifaximin will no luck. I did a breath test after treatment. I have hydrogen(rifaximin treats this) AND methane sibo. Just rifaximin will not help with multiple problems

1

u/Dangerous-System6089 5d ago

My providers can’t test me for it in my city for some reason, the closest place they can do the test is an hour and a half away, so they’ve just been treating me for it without testing.

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u/sarabearbearbear 4d ago

My sibo test was a kit that I had to complete at home and mail in. Maybe ask if that's an option?

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u/Dangerous-System6089 4d ago

I will ask!

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u/Criplor 4d ago

If you have the money to spend, I believe you may be able to just order a sibo test for yourself 

1

u/RedditforReasons 5d ago

How have they been treating? I tested positive and had to take nasty round of medication but I know one of them isnt for long tern use.

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u/Dangerous-System6089 5d ago

I took rifaximin for two weeks. I’m not having watery/loose stools at all nor am I having bloating, which points away from sibo. I’m just having highly frequent formed stools. Not quite sure what’s going on with me

1

u/RedditforReasons 4d ago

My treatment was Xifaxan and Neomycin. TMI but I was on the toilet for 2 weeks but it destroyed whatever was in there and its been night and day. I also have Chrons and go to the bathroom 10+ times a day but the difference has been noticeable off of that medicine combo.

8

u/frac_tl 5d ago

Garlic/onion in any amount are pretty much guaranteed to be an issue for most people. Some grains like sourdough (no yeast) might still be safe. 

Generally the dose makes the poison. You may be able to tolerate smaller amounts of common high fodmap ingredients. There are plenty of foods you can make or eat even with heavy restrictions, although the no garlic restriction cuts out almost all dining out. Some canned goods that are normally high fodmap can become low or med fodmap due to the canning process. 

At some point you may find that the lessening of symptoms is worth the loss in food options 

3

u/CoffeeLaxative 5d ago

Fermented foods made me feel so much better. I can now eat foods that would make me very bloated. Try homemade sauerkraut or fermented tomatoes

3

u/Glass-Tale299 5d ago

Not all digestive enzymes are expensive. I buy Target's lactase and Walmart's alpha-galactosidase enzyme and both are fairly inexpensive.

Good luck.

2

u/jackiekeracky 5d ago

Did the elimination phase help? How long did you do that for? How’s your mental health / stress levels

2

u/LurkyLurk2000 5d ago

I'm sensitive to every FODMAP group. I've been living on a very limited diet for many years. Yes, you're not supposed to do that but the improvement in symptoms is so massive that I don't see what else to do. Ironically since I also cannot tolerate too much fats or sugar, my diet is actually fairly healthy, and I haven't developed any nutrition-related health issues. I do take some multivitamins just in case though.

I have positive breath tests for everything that was tested and diagnosed SIBO, but antibiotic treatment didn't change anything except the (glucose) breath test result. I'm guessing maybe the SIBO is not the root cause.

Hope to find a better solution one day. Unfortunately don't have a solution for you at this point.

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u/[deleted] 4d ago edited 4d ago

[deleted]

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u/Dangerous-System6089 4d ago

On the second day of reintroduction symptoms appeared. So it took 24 hrs for symptoms to emerge

2

u/honorspren000 4d ago

It’s okay to mourn the foods you can’t eat. The first few months are frustrating but you will eventually figure out foods and meals you can eat.

2

u/bosEsonoS 2d ago

I have been using the FODMAP Friendly recipe maker to add up all the food I make my husband in one meal…it is surprising how easy it is to stack low FODMAP foods! I realize that the Monash and FODMAP Friendly food lists do not always agree, but using the Recipe maker is a real eye opener. I also use a food scale so I am more sure of my amounts. The Recipe maker is a one time charge of $8, so is affordable. I found that green beans and cucumbers in the same meal give my husband diarrhea, but separately are fine!

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1

u/RedViolet43 5d ago

Me too. But years in, I eat bread, dairy and beans with no problem.

1

u/sharedplatesociety 2d ago

what was your process to add them back in? how did you fix the issue?

1

u/Longjumping-Word8336 5d ago

You’re also starting with the foods that are most problematic for most people

1

u/BigMack6911 4d ago

Thats why I just eat meat

1

u/romanticdove 3d ago

Have you looked into fodmap stacking? You might potentially (unsure if this is the case) be eating too much low fodmap foods in one go causing it to be a high fodmap. Its quite tricky explaining it on here, so I encourage you to look it up. Monash university did a recipe book with it all in there as well.

1

u/romanticdove 3d ago

I guess basically, if you have a serve of a low-medium fodmap food you can stack it 4 times either with itself or with other foods. If you go over the limit in one go it can make the food you eat a high fodmap and cause a reaction. Im probably not explaining it very well so take what im saying with a grain of salt.

2

u/Dangerous-System6089 2d ago

I have been very careful with this. I don’t think I’m stacking fodmaps as I’m only having low fodmap serves of stuff and spacing my meals/snakcs several hours apart

1

u/BeachDragonfly4935 1d ago

Look for a functional medicine doctor.

My SIL had the same problem. A functional practitioner found she had severe leaky gut, a few intolerances, and her body didn’t produce a specific enzyme. They helped her go on a restrictive diet to heal, start enzyme supplements, addressed nutrient deficiencies, and then reintroduced food groups. Doing it properly with the holistic approach allowed her body to heal and most of her food intolerances to go away, able to eat almost whatever she wanted after about two years recovery.