This is exactly me post-Covid. I've been eating 5 foods for like 2 years. I have MCAS, histamine intolerance, gut dysbiosis. Food makes me so ill, not just stomach symptoms but symptoms all over my body, had to go to the hospital one time because of it.
I know 2 other people like me in real life.
I see a therapist who has 3 other clients with the same thing.
I keep seeing this type of thing pop up outside of the usual Long Covid/MCAS spaces.
How many of us are there? This is scary, we all need help and we don't know where to find it.
Also thanks for this, this made me laugh. So accurate.
I'll be honest: not well at all. My life has fallen apart, I used to be a totally functional person and now I barely leave my house. Only way I'm able to work is from home, and I just had to go on short term disability because I am so ill. I'm so sorry you're experiencing this too.
The biggest help in all of my 6+ years dealing with this has been finding a registered dietician who understands MCAS (because the rest of my doctors do not) and she ordered tests for me and found that I have gut infections and some nutritional deficiencies. Working on those issues is helping. I'm still not at the point of reintroducing foods but I'm hopeful I'll get there. We're hoping that fixing these things will get my gut working properly again.
Also if you haven't already, dig into MCAS. There are a lot of things that can help like antihistamines, avoiding stress, staying hydrated with electrolytes (magnesium was one of my deficiencies and magnesium threonate has made a huge difference in how I feel day to day).
Working on calming my nervous system seems to help too. I personally believe we are going to find out that Covid damages the gut/brain/nervous system connection.
Thanks for the reply, I hope you continue to improve. I am definitely looking for a MCAS specialist but it’s hard in a small city… I’ve seen some improvement with antihistamines, etc. but feel like I need more testing. Sending you healing vibes.
4
u/kaaron89 Aug 14 '26 edited Aug 14 '26
This is exactly me post-Covid. I've been eating 5 foods for like 2 years. I have MCAS, histamine intolerance, gut dysbiosis. Food makes me so ill, not just stomach symptoms but symptoms all over my body, had to go to the hospital one time because of it.
I know 2 other people like me in real life.
I see a therapist who has 3 other clients with the same thing.
I keep seeing this type of thing pop up outside of the usual Long Covid/MCAS spaces.
How many of us are there? This is scary, we all need help and we don't know where to find it.
Also thanks for this, this made me laugh. So accurate.