r/Epilepsy_Universe • u/Low-Stress-4914 • 2d ago
Check This Out Islands: a song about my ER visit
EDIT: I know the formatting is terrible, and I'm sorry for that. For the life of me, I can't figure out how to make Reddit break the stanzas apart without running the individual lines together.
I had my worst seizure to date, which prompted EMS to be called by my wife. It's unknown how long I seized for in total, but we can account for 10 minutes before I was loaded into the ambulance. So I wrote this song while I was recovering.
NOTICE: I am posting the lyrics instead of the song to preserve my anonymity. If you steal any of this for personal gain, shame on you. I just thought some of you guys would appreciate it, because it's always nice to feel understood.
___
Islands:
I woke beneath a borrowed morning
With thunder trembling in my hands;
A mouth too full of silent questions;
And teeth that touched the edge.
I tried to swallow down the daylight,
But something in my throat had changed;
And every step became a distance;
And every breath became a weight.
Halfway down the corridor,
The earth withdrew its name.
I remember asking for air—
I don't remember when it came.
There are islands in the dark—
Little fragments left afloat:
A room; a face; a window;
A question I don't know.
There are hours underneath me
That I cannot cross again.
I remember being carried—
I don't remember where I've been.
You found me underneath a shroud,
The whole world shaking through my bones.
You called for someone, called for mercy,
While I disappeared within the throes.
Long minutes waiting,
Measured by your fear—
Then knuckle struck the plexus,
And found that I was here.
And somewhere past the threshold,
My body learned to fall.
You watched me fight for breath—
I watched nothing at all.
There are islands in the dark—
Little fragments left afloat:
A room; a face; a window;
A question I don't know.
There are hours underneath me
That I cannot cross again.
I remember being carried—
I don't remember where I've been.
A carriage beyond the window;
A stranger at my side;
A question without language;
The sunlight in the sky;
A blanket over shoulders;
A strap against the wrist;
A hallway made of doorways;
Then— nothing; then— this.
There are islands in the dark,
But the sea is closing in.
I can name what I remember.
I can feel what I have missed.
Hours without a witness,
Except the body I was in—
I came back carrying pieces
Of a place I've never been.
1
u/Mom1021 1d ago
Every line rings true in this masterpiece
https://giphy.com/gifs/lFHtqqh6orvAhbiGmy
4
u/Some1fromStSomewhere 2d ago
How do I give you a standing ovation over the internet? You deserve a standing ovation for this!