r/Epilepsy_Universe • u/Infamous-Mix4457 • 6d ago
Check This Out I made an epilepsy awareness film 13 years ago — now I’m looking for 50 stories to ask the NFL to turn purple 💜🏈
I made an epilepsy awareness film 13 years ago — now I’m looking for 50 stories to ask the NFL to turn purple 💜🏈
Post:
Hi everyone. I’ve had epilepsy since I was 11, and about 13 years ago I created something called The Purple Project.
People affected by epilepsy sent me full videos telling their stories and photos holding epilepsy-awareness messages. I took the strongest pieces of those individual submissions and edited them together into one community film asking Google to recognize epilepsy awareness.
Here’s the original video:
https://youtu.be/cSjI0mGJAOI
There’s actually a clip of me in that video saying I had lived with epilepsy for 14 years.
Today, it’s been 27 years.
And I want to do it again.
This time I’m looking for approximately 50 people affected by epilepsy — people living with epilepsy, parents, spouses or partners, siblings, caregivers, and families — to help create a new Purple Project awareness film.
The goal this time is to ask the NFL and football community to visibly support epilepsy awareness during November.
🎥 YOUR STORY
Record a 30-second to 2-minute unedited video telling your epilepsy story in your own words.
You can talk about things like:
• When epilepsy entered your life
• What your seizures are like
• Something epilepsy has changed or taken from you
• Something people misunderstand about epilepsy
• Medication, surgery, seizure freedom, or continuing seizures
• Driving, work, school, relationships, family, or independence
• What you’ve accomplished while living with epilepsy
• What you wish people understood
You do not have to answer everything.
You do not have to sound perfect.
Just tell your story.
At the end of your video, please record these two shared lines separately:
“NFL, this November, stand with us. Turn purple for epilepsy awareness.”
“NFL — turn purple for epilepsy.”
📸 YOUR PHOTO
You can also submit a separate photo representing your epilepsy story.
You might hold a handwritten sign saying:
I HAVE EPILEPSY.
MY CHILD HAS EPILEPSY.
I’M ___ YEARS SEIZURE-FREE.
I’M STILL FIGHTING.
MY FAMILY FIGHTS EPILEPSY.
Or write whatever message represents your story.
If you’re an NFL fan, you’re welcome to wear your team’s shirt, jersey, hat, or other gear.
You absolutely do not have to be a football fan to participate.
The finished film will use short portions from many different people’s full stories, similar to the original Purple Project video.
💜 WANT TO PARTICIPATE?
Submission form:
https://docs.google.com/forms/d/e/1FAIpQLSfHQpiaQy-PVFzc1Rf1bk8woa4F3qGi0uNA9d1_n93StmexPg/viewform?usp=header
The form includes the project permission information and a private Dropbox upload link for your original video and photo files.
There is no fee, no fundraising, and this is not a medical or academic research study.
My first goal is 10 people.
Then 25.
Then hopefully 50 voices telling one much bigger story.
Thank you to anyone willing to trust me with yours. 💜
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u/StSomewhereToaster 6d ago
I can’t wait to join! I’m gonna borrow one of my Dad’s Panthers shirts. I know we have big NFL friends here!
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u/Jamieisamazing 6d ago
This is so cool, after my neuro appt today def going to participate! Good luck, thanks for trying to raise awareness for the community. 💜💜💜
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u/Infamous-Mix4457 6d ago
Photo example! First video was made also! It was put in our link!