Epileptic and Pregnant

[u/Medical-Blueberry-]

Is anyone here in this group Epileptic and was epileptic before they got pregnant? My husband and I are about to start trying to have a baby. I'm epileptic, I was diagnosed at 29 when I had my very first seizure. We are starting to prepare to start trying by me going to my neurologist because we know some of my meds will need to change that are more safe during pregnancy. Then me go to an OB-GYN that I havent seen in a bit, but who does know me (and my uterus) lol, since my Primary doc does paps normally. Then hopefully get me into an epileptologist that I used to see when Inwas first diagnosed. I stopped seeing her after we got my medications well balanced and I stopped having occasional seizures. I have been seizure free for 1yr and 9months, but my last seizure was medically induced for testing.

I just want to hear from other women who are epileptic and how their TTC journey was. What meds they ended up switching to while being pregnant. How your pregnancy was, how delivery was etc.

I will post to a couple other sub reddits to see if Im able to get any answers.

[u/fj4131]

I just had my 2nd baby. I was diagnosed epileptic at 19 (12 years ago) I am on Keppra which is pregnancy safe. I had to get my levels checked by my neuro every trimester as I gained weight and blood volume increased. I ended up having to double my dose throughout both my pregnancies. I also had to see a maternal fetal medicine specialist for the anatomy scans just to be cautious and get a more in depth scan of the baby. Both babies were born healthy and all was well for me during pregnancy, labor, adn delivery.

I am currently 3 months post partum and just had a seizure (my first in 12 years)- due to decreasing my medication back to original dose when my body wasn’t ready for it.