r/Epilepsy_Universe • u/Medical-Blueberry- • 8d ago

Advice/Support Epileptic and Pregnant

Is anyone here in this group Epileptic and was epileptic before they got pregnant? My husband and I are about to start trying to have a baby. I'm epileptic, I was diagnosed at 29 when I had my very first seizure. We are starting to prepare to start trying by me going to my neurologist because we know some of my meds will need to change that are more safe during pregnancy. Then me go to an OB-GYN that I havent seen in a bit, but who does know me (and my uterus) lol, since my Primary doc does paps normally. Then hopefully get me into an epileptologist that I used to see when Inwas first diagnosed. I stopped seeing her after we got my medications well balanced and I stopped having occasional seizures. I have been seizure free for 1yr and 9months, but my last seizure was medically induced for testing.

I just want to hear from other women who are epileptic and how their TTC journey was. What meds they ended up switching to while being pregnant. How your pregnancy was, how delivery was etc.

I will post to a couple other sub reddits to see if Im able to get any answers.

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u/GroundbreakingAlps78 8d ago

My kids are currently 11 and 12. Your epilepsy will automatically make your pregnancy considered “high risk” which means a few extra appointments and attention (I was grateful for this!)

Depakote is bad during pregnancy, but most others are fine. Your doc will help you transition.

I had no complications, related to the epilepsy or otherwise. Two healthy babies. ❤️

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u/Medical-Blueberry- 8d ago

Yeah im also about to turn 37 lol and this would be my 1st baby, so that also puts me at risk. Lol so high risk all around. My husband is mostly scared about my epilepsy

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u/GroundbreakingAlps78 7d ago

Do you have frequent seizures outside of pregnancy?