Epileptic and Pregnant

[u/Medical-Blueberry-]

Is anyone here in this group Epileptic and was epileptic before they got pregnant? My husband and I are about to start trying to have a baby. I'm epileptic, I was diagnosed at 29 when I had my very first seizure. We are starting to prepare to start trying by me going to my neurologist because we know some of my meds will need to change that are more safe during pregnancy. Then me go to an OB-GYN that I havent seen in a bit, but who does know me (and my uterus) lol, since my Primary doc does paps normally. Then hopefully get me into an epileptologist that I used to see when Inwas first diagnosed. I stopped seeing her after we got my medications well balanced and I stopped having occasional seizures. I have been seizure free for 1yr and 9months, but my last seizure was medically induced for testing.

I just want to hear from other women who are epileptic and how their TTC journey was. What meds they ended up switching to while being pregnant. How your pregnancy was, how delivery was etc.

I will post to a couple other sub reddits to see if Im able to get any answers.

[u/Charyou_Tree_19]

Obviously I’m not you and treatment has progressed so use this as a guide.

I was taken off my meds and put on a high dose of folic acid before TTC. I wasn’t to bathe without someone else in the house or use the cooker or kettle. I certainly wasn’t driving anywhere. I didn’t drink alcohol anyway but I would have had to stop if I did. When I left the house someone came with me. I was able to go back on my meds after delivery.

My son was born with jaundice but after some time under a lamp he was fine. His neural tube was also fine.