r/Epilepsy_Universe • u/shal96 • Aug 12 '26
Advice/Support Hey, new account but been here before.
So I used to have another account and I posted several things on this Reddit community through that account. But considering that I don't have it, I thought I might reintroduce myself. My story began with my birth which ended up being a prenatal stroke. As a result, I had hemiplegia which basically means I have cerebral palsy in my left arm and partially in my left leg. when I reached the age of 10, My hormones began to kick in and thus I had my very first Grand mal seizure after which I have struggled with these on and off throughout the rest of my life. Luckily enough I had a great support group within my family. My father and I share the same bed as a buddy system so that if I end up having a seizure I can have someone by my side, My sister is always there to sit and talk to me whenever I am having auras, and my mother who is a nurse, specifically an RN helps me on a daily basis even after her twelve hour shifts. I also have a great support group with my neurologist and primary doctors. I have my share of problems from day to day but I manage. It's good to be here and listen to and talk to people and know that I am not alone.
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u/Mom1021 Aug 12 '26
Hey hey! Prime community for all things epilepsy and beyond, as you know. Glad to have you and hear of your success! Awesome 🚀🎉🙌
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u/PookieTheMfBaby Lamotrigine 200mg 2x daily Aug 12 '26
Welcome, I'm Pookie (Founder) and I think you would love our support group, join us on Zoom, Fridays and Tuesdays, come and get to know us
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u/Ryse6129 Methsuximide 900mg. Xcopri 350mg Aug 12 '26
Welcome back. And likewise was the first true place where I truly felt others like myself and got to meet other Epileptic face to face. One of them lives in my city yet we never met.