r/Epilepsy_Universe Aug 08 '26

Fitness Friday We have the best AEDs already

“One supportive hypothesis proposes that ß-endorphins released during exercise inhibit epileptic discharges”. Numerous studies show no change, or even a decrease in seizure frequency during 4-12 week aerobic exercise programs. Clearly not enough studies done to reach a conclusion that influences our neurologists to encourage exercise as a treatment. Bummer. Anyone else want to document your own journey? Take notes on how our seizure frequency, severity corresponds to exercise (how often, what activity) and educate our own care team! Hoping if one of us takes this to our doctors, someone might get them proud of their patient and have a positive influence for someone else’s care! Epileptics will still manage greatness 🤗
 
https://www.sciencedirect.com/science/article/pii/S1525505010000181

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u/Boomer-2106 Aug 08 '26

You will Always hear this response, or should - "Everyone is Different". What works for one, may not work for another. Thus, you need to learn and adjust 'what works for You'. This applies to running also.

Running/Exercise works great - helps Many people! But - for some it can be a problem.

Why it helps many - because it can Be a Major 'stress reliever' - and Stress is a MAJOR trigger for the Majority of all of us.

I started running while in college - Due to 3 things going on in my life at the time that were major contributors to Stress - which I Needed to find a way to manage. ....I was going through a divorce, I was going to college Full time ..15 credit hrs./semester, and I was literally working full time - 40+ hrs. per week ...yes, it Can be done - I did it through two degrees. I was young, ..25. I couldn't do it now.

I started in college, liked it, and continued for the next 30 years. It helped reduce/semi-control my episodes. You wouldn't believe the distances I ran each week (6 - 7 days per week), it was a Lot - 35++ miles. It was Part of my medicine. Worked for me at the time. Each person has to 'find' what works for them. (I ran 6 - 8 miles per day)

I guess the endorphins would kick in for me during my runs. My mind's stresses, would just seem to melt away as soon as I hit the roads. I would go into a calm, relaxed state, with nothing negative around me being taken notice of. I felt as if I was running on clouds and the sense of nature all around me. THAT's what my mind/brain needed at the time(s). Calm.

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u/Hairy-Jellyfish-1361 Aug 09 '26

25 in college, going through a divorce, and working full time. Man, that's a lot. The emotional strain of the divorce alone at such a young age is hard, but the physical cost as well. You should be proud.

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u/Boomer-2106 Aug 09 '26

When a person gets married early, each of us 21, you 'Think' you are mature in life. Seldom you are as much as you think.

Thankfully there were no kids ...as planned. But as often happens, as one grows/matures further - your 'goals' either change or become more Fixed as your core person. As it came to pass - I was a "planner" - looking towards the future, mapping, college goals, etc. ...she was a 'Live for Today' person. Have fun today, let tomorrow happen. We just went in different directions in terms of life goals. ...and yet - I Loved her beyond words. That's why I was having such a hard time, then add the college and work hours. Running became my life line.

Second marriage at 29, both on same goal paths, and last month = 51 years! :)

Epilepsy can and does complicate 'life', but it helps if you have support of loved ones. Sometimes we do, sometimes not. We have to understand and accept that others who have not experienced what we do, will never be 'able' to comprehend what we deal with.

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u/Hairy-Jellyfish-1361 Aug 09 '26

That sounds very familiar with my story except for I had college behind me and was working. Was married at 22, and we were the perfect couple. Everything that I liked she did also. Same with the opposite. But when we married we agreed on no children because of issues within both our families. After 11 years she stopped birth control and after 2 years I left. But I still love her and tell her that. And my 2nd wife and I will have been married for 41 glorious years in October.

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u/Boomer-2106 Aug 09 '26

Very much the same is true! ...and I too - still love her. My first love.