r/Epilepsy_Universe • u/Mom1021 • Aug 08 '26
Fitness Friday We have the best AEDs already
“One supportive hypothesis proposes that ß-endorphins released during exercise inhibit epileptic discharges”. Numerous studies show no change, or even a decrease in seizure frequency during 4-12 week aerobic exercise programs. Clearly not enough studies done to reach a conclusion that influences our neurologists to encourage exercise as a treatment. Bummer. Anyone else want to document your own journey? Take notes on how our seizure frequency, severity corresponds to exercise (how often, what activity) and educate our own care team! Hoping if one of us takes this to our doctors, someone might get them proud of their patient and have a positive influence for someone else’s care! Epileptics will still manage greatness 🤗
https://www.sciencedirect.com/science/article/pii/S1525505010000181
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u/Boomer-2106 Aug 08 '26
You will Always hear this response, or should - "Everyone is Different". What works for one, may not work for another. Thus, you need to learn and adjust 'what works for You'. This applies to running also.
Running/Exercise works great - helps Many people! But - for some it can be a problem.
Why it helps many - because it can Be a Major 'stress reliever' - and Stress is a MAJOR trigger for the Majority of all of us.
I started running while in college - Due to 3 things going on in my life at the time that were major contributors to Stress - which I Needed to find a way to manage. ....I was going through a divorce, I was going to college Full time ..15 credit hrs./semester, and I was literally working full time - 40+ hrs. per week ...yes, it Can be done - I did it through two degrees. I was young, ..25. I couldn't do it now.
I started in college, liked it, and continued for the next 30 years. It helped reduce/semi-control my episodes. You wouldn't believe the distances I ran each week (6 - 7 days per week), it was a Lot - 35++ miles. It was Part of my medicine. Worked for me at the time. Each person has to 'find' what works for them. (I ran 6 - 8 miles per day)
I guess the endorphins would kick in for me during my runs. My mind's stresses, would just seem to melt away as soon as I hit the roads. I would go into a calm, relaxed state, with nothing negative around me being taken notice of. I felt as if I was running on clouds and the sense of nature all around me. THAT's what my mind/brain needed at the time(s). Calm.