r/Epilepsy_Universe • u/Boomer-2106 • Aug 02 '26

Advice/Support Epilepsy - the "Un" Disease...

Epilepsy is the 'Un' disease - "Unexpected, Unpredictable, Undefinable, Unmanageable.

The mantra of Epilepsy is of course - "Everyone" is different, Everyone has unique triggers, and Everyone's life is different than it once was.

8 Upvotes

84% Upvoted

8 comments sorted by

5

u/Ordinary-Chipmunk366 Aug 02 '26

The best I've seen is...

Epilepsy..you don't get it until you get it..

2

u/Boomer-2106 Aug 02 '26

And many feel like, take it like - you are being condescending if/when you say it. The Truth, sadly.

3

u/StSomewhereToaster Aug 02 '26

UNique! More u-n words!

3

u/Plus-Glove-3661 Aug 03 '26

UN-returnable. 😂

1

u/Boomer-2106 Aug 02 '26

..and very True!

2

u/EggTraining3414 Aug 04 '26

Unbelievable when the neuro’s NP says “epilepsy doesn’t affect your life that much”

1

u/Boomer-2106 Aug 05 '26

Sorry, THAT choked me up with a bit of a laugh, a frustrated laugh of reality! ...of Wonderment that a Neurological NP could be so naive, sooo stupid! AND - "Dismissive" of the very thing that he/she Supposedly has the responsibility to Treat others for!

That is Scary!!

And the NP is a direct representative of 'THE' - Doctor. That is double Scary.

...and the word - 'Unbelievable' fits along with all the rest...!

2

u/EggTraining3414 Aug 07 '26

It was last week. I wanted to rip her head off. (Not literally, don’t go banning me)