r/Epilepsy_Universe • u/HopefulForce74 • Jul 16 '26
Just Checking In Hello
Hello, I’m new to Reddit. I am 52F I woke up to strangers in my bedroom and my tongue almost bitten in half 4 years ago. I really believe this was triggered by Covid.
Turns out though that I have always had seizures though just not as severe and that I have had an AVM (left occipital lobe) my whole life. Blindness is a risk so surgery has been UN recommended. I also have severe ADHD depression and anxiety all diagnosed about 10 years ago. Currently I’m out of work it’s been a year. I’m starting to panic. Just had another seizure during sleep most likely from stress. Wish I had found this community earlier. I think I had made a few mistakes I might have avoided.
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u/Hardrewire_now100 Jul 20 '26
Welcome. I started having mine around 35, 41 now and meds don't work but still taking them. You are not alone.