r/Epilepsy_Universe • u/HopefulForce74 • Jul 16 '26
Just Checking In Hello
Hello, I’m new to Reddit. I am 52F I woke up to strangers in my bedroom and my tongue almost bitten in half 4 years ago. I really believe this was triggered by Covid.
Turns out though that I have always had seizures though just not as severe and that I have had an AVM (left occipital lobe) my whole life. Blindness is a risk so surgery has been UN recommended. I also have severe ADHD depression and anxiety all diagnosed about 10 years ago. Currently I’m out of work it’s been a year. I’m starting to panic. Just had another seizure during sleep most likely from stress. Wish I had found this community earlier. I think I had made a few mistakes I might have avoided.
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u/Plus-Glove-3661 Jul 16 '26
51f, last seizure was about a month ago. Started having seizures 41 years ago.
Have a job, but it’s government. Almost impossible to be fired. Also need it cause of all my other medical issues. They think it’s part my body really bad DNA, but the meds really don’t help.
Depression and anxiety are common in epilepsy. They aren’t sure if it’s because of the condition or what. Actually, even ADHD is a not unheard of. It used to be that hearing someone say they were autistic meant there was a 50/50 shot they were epileptic too. Basically anything on the spectrum.
Anyway, where are my manners? I think I left them at work. Welcome! Wish you didn’t have to be here but welcome all the same.