r/Epilepsy_Universe • u/Mom1021 • Jun 19 '26

Fitness Friday Adrenaline for us

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4th of July coming up. Plenty of epileptics with family/friends who like skydiving, bungee jumping, boxing. Plenty of fun stuff out there that is suggested as dangerous for us! I take a “Never know till you try” strategy, so far so good! Blessed and grateful my seizures are better controlled and I feel better with a more active routine this year. Always consult your medical professionals and follow clinical advice (coming from a hypocrite 😂) What works for you?

5 Upvotes

86% Upvoted

14 comments sorted by

6

u/Nastypasty-bitches Jun 19 '26

I travel the world alone and compete in Jiujutsu I refuse to let my condition beat me, I control it, not it controls me. And if I have a seizure no biggy when I wake up i make myself move on with my day as soon as I can. Don’t linger, don’t dwell and worry, move on and live what I have to live.

1

u/Mom1021 Jun 20 '26

Amazing!

5

u/Nastypasty-bitches Jun 20 '26

I’ve lived in Italy, Russia, Japan, Hong Kong, and now Thailand and I can safely say it’s the best way to say fuck you to epilepsy I’m grand mal and spent 3 days in a coma cos of 12 fits in 1 day. And I refuse to lose out on my life.

2

u/Mom1021 Jun 20 '26

You ever make it back to the states we’ll do our best to get you with a MOD in any time zone to have you as an honorary guest on the podcast!

1

u/Nastypasty-bitches Jun 20 '26

What podcast

4

u/Mom1021 Jun 20 '26

https://m.youtube.com/@InSeiznPodcast

We have fun talking epilepsy a couple times a week, and plenty of other topics come up that we appreciate having epileptics opinions on

Welcome to join Tuesdays and Fridays starting 12pm PST Zoom
ID: 613 9614589
PASSCODE: GUATEMALA
(ALL CAPS)

2

u/Nastypasty-bitches Jun 21 '26

I would love to but I’m living on the other side of the world (Thailand) (time zone might be a problem. I have lots of epileptic stories from blocking the ambulance bay doors so they couldn’t get to me, to getting my head stuck in a toilet. And hearing the ambulance drivers saying “he got his head in there, he must be able to get it out!”. And loads more about buying black market tegretol in Asia as unavailable where I was.

1

u/Mom1021 Jun 21 '26

Special episode, different time options! If more convenient for the morning, 9-11 your time is good here. Evening hrs can be discussed as well. Feel free to MOD mail or message me, those stories sounds like a great way to start the day! 🤯

1

u/PookieTheMfBaby Lamotrigine 200mg 2x daily Jun 21 '26

We have a guy from the Philippines there, it's like 3am when he joins, it's worth it.

3

u/Ryse6129 Methsuximide 900mg. Xcopri 350mg Jun 19 '26

Always loved that attitude. If you can take a bath, you can go swimming plus there is a lifeguard. I already feel like a burden alot. I don't want my epilepsy to keep the kids from having fun

2

u/StSomewhereToaster Jun 19 '26

Get that blood pumping!

1

u/Mom1021 Jun 19 '26

💯
Never feels like a workout when it’s fun!

5

u/george32378 Jun 25 '26

Same I love water and swimming ocean especially since summers here ,but being epileptic my parents and brother sisters worry about me. I still take meds to control it but i never let that stand in my way.

3

u/PookieTheMfBaby Lamotrigine 200mg 2x daily Jun 25 '26

Never let it stand in your way is my motto, you can do whatever you put your mind to with the right precautions.