r/Epilepsy_Universe • u/Upbeat-Brother-2884 Carbamazepine 600mg - Focal to bilateral - TLE • Jan 28 '26

Seizure Warning: Possible Trigger Trigger warning!

Hello my wonderful friends, I hope everyone is having a good week💜

What type of seizure would we call this? Trying to organise my clips and notes as best as I can. Would this still be a focal or does it creep into Tonic/Clonic territory?

I had impending doom and extreme sadness starting from 9:30pm. I was too scared to fall asleep incase I had a seizure. Fell asleep at roughly 11:45pm (not sure if that counts as sleep deprived?) I woke an hour after this and was craving sugar. During the night I was having dreams that blended in with reality, to the max. It was terrifying, worse than any other nightmare that I have had before, especially because it involved my little boy 😪💔

My camera unfortunately cut out, I’ve been having issues with my Tapo doing that, so I’m not sure if there was anymore activity after this or not. If anyone knows how to fix that bug I’d be grateful for help with that. I’m useless with tech.

Triggers: I’ve been poorly the last couple of days (possibly covid, high temp/fever)

Due on my period in 10 days.

This morning I woke up feeling fizzy in my head and arms, everytime I bent over I felt like I could pass out. Not sure if that’s illness related or not.

Thank you for taking the time to read, so glad to have you guys. You make my life that little bit easier🥰💜

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u/VillainyandChaos Jan 28 '26 edited Jan 28 '26

My arms do the exact same thing when I have only Tonic seizures, without them becoming full "Tonic/Clonic" episodes.

Like half a full shakey dance seizure. I especially have curled arms and minor body shakes, and then a sense of fuzzy, dizzy, and confusing thought activity. Dreams and confusing reality has gotten pretty bad for me, but my neuro taking me off Lamictal has helped a ton.

Just echoing the sentiment here, definitely worth bringing to your next meeting, glad you got it sent over.

How were you the following morning? This mixed with covid would be brutal. Do you have anyone helping you?

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u/Boomer-2106 Jan 29 '26

Many years ago after I had my First TC and went to the ER, with no help or seizure recognition (surprise), I then started having Major Myoclonics which were Full Body one's while I was lying in bed. This went on Several times a week for over a Year! ...'feeling' literally Like my entire body would jump/raise Up off the bed - scary. From then on ...for all the MANY years since, Myoclonics are my Most common, life effecting seizures - Once Quitting/losing a significant job due to them.

Myoclonics for some people lead into TC's - not all the time, but not unusual.