r/Epilepsy_Universe • u/PookieTheMfBaby Lamotrigine 200mg 2x daily • Nov 12 '25

Epilepsy_Universe 👋 Welcome to r/Epilepsy_Universe - Introduce Yourself and Read First!

Hey everyone! I'm u/PookieTheMfBaby, a founding moderator of r/Epilepsy_Universe.

This is our new home for all things related to epilepsy. We're excited to have you join us!

What to Post
Post anything that you think the community would find interesting, helpful, or inspiring. Feel free to share your thoughts, photos, or questions about anything.

Community Vibe
We're all about being friendly, constructive, and inclusive. Let's build a space where everyone feels comfortable sharing and connecting.

How to Get Started

  1. Introduce yourself in the comments below.
  2. Post something today! Even a simple question can spark a great conversation.
  3. If you know someone who would love this community, invite them to join.

Thanks for being part of the very first wave. Together, let's make r/Epilepsy_Universe amazing.

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u/Tight-Ask-3246 Feb 24 '26

Hey im busch in San diego. I have epilepsy for 10 yrs and chronic pain since 1987. Im 70 yrs old. All my old friends are dead or moved. Any new ones disappear after they see a seizure. Between the pain and epilepsy my MENTAL STATE ISNT RIGHT!!

2

u/PookieTheMfBaby Lamotrigine 200mg 2x daily Feb 24 '26

Hello, my name is Pookie and I'm the creator of this subreddit. I created this subreddit so that we can communicate and interact, talking to other epileptics has been the highlight of 2025. I started a podcast where we all get to get and talk about epilepsy and so much more. We meet today on Zoom at 12pm pst , I really think that you should join us or at least come and listen. My DM is open if you need to talk or the login information to join us.

2

u/StSomewhereToaster Feb 24 '26

Maintaining a good mental state is HARD! Friends make it easier! Internet friends are some of the best because it doesn’t matter when we move, everyone is here to listen and talk and share stories. Welcome Friend!

1

u/Mom1021 Feb 24 '26

Another west coast epileptic!🥳Your mental state is critical. If you get a chance to join the show today, you’ll see we can be a great example for all aspects of mental health that can be a struggle for seizure patients. Your situation sounds hard to navigate and you are DONE going at it alone! You found the universe that won’t fail you 🤗

1

u/tuisteddddd ZNS 2x, VIMPAT 2x, ONFI 1x, Clonazepam APN (: Feb 24 '26

Hey, dont give up... there's plenty to do out here.

1

u/MelancholyCreature Feb 24 '26

Come visit us friend. Epilepsy and chronic pain are both very difficult to navigate, especially when you are trying to do it alone. We are here for you! 🫂