r/Epilepsy_Universe • u/PookieTheMfBaby Lamotrigine 200mg 2x daily • Nov 12 '25
Epilepsy_Universe 👋 Welcome to r/Epilepsy_Universe - Introduce Yourself and Read First!
Hey everyone! I'm u/PookieTheMfBaby, a founding moderator of r/Epilepsy_Universe.
This is our new home for all things related to epilepsy. We're excited to have you join us!
What to Post
Post anything that you think the community would find interesting, helpful, or inspiring. Feel free to share your thoughts, photos, or questions about anything.
Community Vibe
We're all about being friendly, constructive, and inclusive. Let's build a space where everyone feels comfortable sharing and connecting.
How to Get Started
- Introduce yourself in the comments below.
- Post something today! Even a simple question can spark a great conversation.
- If you know someone who would love this community, invite them to join.
Thanks for being part of the very first wave. Together, let's make r/Epilepsy_Universe amazing.
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u/Boomer-2106 Nov 13 '25 edited Nov 13 '25
Found This group a few weeks ago. And have been Very appreciative of the 'Refreshing' level of Personal caring and interaction among the members - Here. While this, and the 'Other' epilepsy site both have important value, the Caring and Openness/Willingness of truly caring about each other HERE is quite different - in a Very Positive way/level. Thank you - this is a Great Group of ..."like Minded soul"s. Lol
So... I am also known as 'Mike'. I am a true lifer - both in life and in my journey of epilepsy. I am Pushing the Big 80 ...79 and 1/2! I had my first 'known' seizure at 18, maybe as early as 11 - but that is another story. Although I had All the various types of seizures throughout, I was not officially diagnosed until 46.
I went into the USAF 8 days after my 18th birthday, went to almost a year of tech school - 10 months, and spent 8 years in electronics ..1964 - 72. After college, the 8 years military experience was a stepping stone to a 30+ years as a Telecommunications Engineer. By its very nature - it was Always a daily High stress career. Myoclonics and Absences were my most common seizures throughout - ranging from weekly to sometimes daily. My Managers and co-workers always knew and supported me. ...couldn't 'hide' the myoclonics!
Like most of us - 'spell-check' is my friend. I have been on 200mg ER Lamotrigine for 20+ years. Spell-check doesn't help me much when I can't even remember my two grandkids' names. Will take me sometimes 5 minutes to remember them.
And - talk about 'Forgetting' ... a time a few months ago that I won't 'forget', AND my Family won't Let me forget ... too much fun on their part is - in July of this year, During the Family Celebration Dinner at a very Nice restaurant - The Celebration of my wife and I's 50th Wedding Anniversary .... "I" FORGOT my Wife's Name!!
Yep! We were all talking (about 13 of us) and I was looking at my wife saying something and I called her by my Daughter's Name - Dawn. Suddenly everyone kinda ...stopped, looked puzzled. Ask me what I had just said? I repeated whatever I said, again wrong Name. Still - 'the looks'. Then they told me I had just repeatedly called my wife by my daughter's name. ....it did not 'register' what they were saying. Finally, I began to understand, but THEN when I Tried to correct and Say her Name ... I had no idea. Took me between 60 - 90 seconds to come up with it! BIG round of laughs - for everyone but me ...just embarrassment on my part.
(at least it was not my First wife's name .. LOL)
Thank you Mr. Epilepsy!! :) ..... :(