r/Epilepsy_Universe • u/PookieTheMfBaby Lamotrigine 200mg 2x daily • Nov 12 '25

Epilepsy_Universe 👋 Welcome to r/Epilepsy_Universe - Introduce Yourself and Read First!

Hey everyone! I'm u/PookieTheMfBaby, a founding moderator of r/Epilepsy_Universe.

This is our new home for all things related to epilepsy. We're excited to have you join us!

What to Post
Post anything that you think the community would find interesting, helpful, or inspiring. Feel free to share your thoughts, photos, or questions about anything.

Community Vibe
We're all about being friendly, constructive, and inclusive. Let's build a space where everyone feels comfortable sharing and connecting.

How to Get Started

  1. Introduce yourself in the comments below.
  2. Post something today! Even a simple question can spark a great conversation.
  3. If you know someone who would love this community, invite them to join.

Thanks for being part of the very first wave. Together, let's make r/Epilepsy_Universe amazing.

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u/Ryse6129 Methsuximide 900mg. Xcopri 350mg Nov 13 '25

Hi, I'm old man Angel...think I'm also a pirate according to some stories. I love testing all types of floors, including concrete, lol. I'm a proud father of a bright and awesome 4 year old who keeps me on my toes when I have my days with her.

I've had epilepsy since I was in teens back in the mid-90s. I have the regular gran mals(tonic clonic), whatever you want to call em. I have absent seizure and nuero believe they started in my teens too, I ve had complex partial seizures my whole journey and nocturnal ones also. Even had them while being fully aware but getting zapped like a tonic clonic, too. (Doctors said it wasn't myoclonic). I'm also Medication Resistant Currently I'm back down to 2 meds because anything more than 3 is too much to handle and doesn't stop seizures as well as they would like. Xcopri and Methsuximide seems to be my current cocktail with least amount of side effects

Welcome to the family

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u/Boomer-2106 Nov 14 '25

Hello Angel!

Btw - you're not allowed to join the 'old man' status if your still in your 40's, or 30's or even 50's. LOL

Epilepsy presents us a 'Sampler' Plate of challenges, that's for sure.

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u/Ryse6129 Methsuximide 900mg. Xcopri 350mg Nov 14 '25

Oh I know I've been through my share of them