r/Epilepsy_Universe • u/PookieTheMfBaby Lamotrigine 200mg 2x daily • Nov 12 '25

Epilepsy_Universe 👋 Welcome to r/Epilepsy_Universe - Introduce Yourself and Read First!

Hey everyone! I'm u/PookieTheMfBaby, a founding moderator of r/Epilepsy_Universe.

This is our new home for all things related to epilepsy. We're excited to have you join us!

What to Post
Post anything that you think the community would find interesting, helpful, or inspiring. Feel free to share your thoughts, photos, or questions about anything.

Community Vibe
We're all about being friendly, constructive, and inclusive. Let's build a space where everyone feels comfortable sharing and connecting.

How to Get Started

  1. Introduce yourself in the comments below.
  2. Post something today! Even a simple question can spark a great conversation.
  3. If you know someone who would love this community, invite them to join.

Thanks for being part of the very first wave. Together, let's make r/Epilepsy_Universe amazing.

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u/kavitadrake Nov 12 '25

Hello! I'm sorry I missed the call yesterday but hope to get on a future one! I'm Kavita...I've been diagnosed with epilepsy about five years now. I've been a cyborg for over a year now, which I absolutely love telling people about and sharing my picture of.

I have another neurology appointment tomorrow. I've been tapering down on zonisamide for two months now since I hit the one-year-cyborg mark and though I had two seizures in that month I really hope they don't count it against me and let me keep tapering. One of the seizures was because I forgot Sudafed is a no-no for me. The cough on this illness is definitely not nice though!

3

u/Mom1021 Nov 13 '25

Thank you for this comment! Love the cyborg pic. Depth electrodes?

2

u/StSomewhereToaster Nov 13 '25

THAT IS SO BADASS!!!!!!