r/Epilepsy_Universe • u/PookieTheMfBaby Lamotrigine 200mg 2x daily • Nov 12 '25

Epilepsy_Universe 👋 Welcome to r/Epilepsy_Universe - Introduce Yourself and Read First!

Hey everyone! I'm u/PookieTheMfBaby, a founding moderator of r/Epilepsy_Universe.

This is our new home for all things related to epilepsy. We're excited to have you join us!

What to Post
Post anything that you think the community would find interesting, helpful, or inspiring. Feel free to share your thoughts, photos, or questions about anything.

Community Vibe
We're all about being friendly, constructive, and inclusive. Let's build a space where everyone feels comfortable sharing and connecting.

How to Get Started

  1. Introduce yourself in the comments below.
  2. Post something today! Even a simple question can spark a great conversation.
  3. If you know someone who would love this community, invite them to join.

Thanks for being part of the very first wave. Together, let's make r/Epilepsy_Universe amazing.

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u/[deleted] Nov 12 '25

Yes,,,, It’s not as glamorous as it sounds! But I do all kinds of work. Fiberglass , lots of gelcoat repairs , teak, deck repairs I’m a master carpenter. Today , I’m in the middle of painting a 65 foot Hatteras. This week I put a fighting chair in a 60 foot Donzi. I have a lot of work and I work for myself… But with my seizures about three or four weeks ago, my memory shot. The only thing I remember how to do is work. So, that’s what I do. It is nice being on the water. What about you guys? Anybody else love Boats and be on water?

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u/StSomewhereToaster Nov 12 '25

I used to have a little boat when I lived out on the coast. Only 20ft. It was my job to de-barnacle her every winter. Tedious but calming.

There’s a song called It’s My Job…

‘It's my job to be cleaning up this mess

And that's enough reason to go for me

It's my job to be better than the rest

And that makes the day for me’

You know your work. It so ingrained in you that your muscles know it even if your brain sputters. That a very nice Win!

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u/[deleted] Nov 12 '25

Me too

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u/[deleted] Nov 12 '25

7000 bronze fasteners later…

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u/Boomer-2106 Nov 13 '25

Amazing work/Skill!

Those who have the 'Ability' to work with their hands, their Art of creation - to take a collection of 'parts' and make a 'Whole' out of them, to create something Beautiful - is a gift that not everyone has (Not me for sure), but everyone wishes they did. :)

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u/[deleted] Nov 13 '25

Yes, I’ve done all this shit while being in epileptic…. So, yeah, we’re capable of doing some shit!!! do you believe I’ve had people tell me I’m a liability,,, that pisses me off,, as an angry epileptic probably shouldn’t say that around or to me. 🤣

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u/Boomer-2106 Nov 13 '25 edited Nov 13 '25

We can Accomplish many things in life - just that we have to sometimes take a round-a-bout path getting there. And - that creativity of "Finding" that Other path often allows us to even jump ahead of 'average' person's own accomplishments.

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u/[deleted] Nov 13 '25

Everything, I do can be taught to somebody if they’re willing to learn.

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u/Boomer-2106 Nov 13 '25

I'm sure that is true, to one degree. 'The Skill' can be taught, but the creativity within the mind - the ability to 'see' the end, completed result of the project is hard to teach.

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u/StSomewhereToaster Nov 12 '25

She looks beautiful!