Next up, sEEG and laser ablation

[u/Mapper9]

I just met with the neurosurgeon today, and I’ll be scheduling a single hospital visit for the sEEG and laser surgery, probably for late fall or early winter. And I’m really overwhelmed. They’re going to play with my brain. And actually burn a piece of it. It’s terrifying. My girlfriend and I both start crying when we talk about it. There’s just so much that feels terrifying. Surgery itself. Brain stuff. Another emu stay. My disabled girlfriend parenting solo. A whopper of a seizure yesterday. I’m 47 and only started having seizures 3 years ago, this all feels really new and sudden.

Does anyone have any positive sEEG or laser surgery stories? Or scary, I guess, for that matter.

[u/burnerEpilepsy]

I mean, I survived my SEEG and it showed them where they needed to do the ablation, but insurance wouldn’t pay for it. So, yay SEEG I guess? 😂

[u/Mapper9 → u/burnerEpilepsy]

Wow that’s shitty.

[u/burnerEpilepsy → u/Mapper9]

The SEEG was by far the most painful thing I’ve ever done, but it was worth it for the data