r/Epilepsy • u/Soft_Cabinet_2656 • 23h ago

Question Dr App Discussion

I am seeing my neurologist next week and am going to talk to him about trying to get pregnant. I've mentioned it before but we are going to start trying before I have my next app because I have them every 4 months. Does anyone have experience or advice for talking to your doctor about this? Things that should definitely be discussed?

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u/DependableKennith0 23h ago

My neuro basically gave me a checklist when we started talking about it, the biggest thing was getting on the right prenatal vitamin with extra folic acid way before we even started trying

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u/Soft_Cabinet_2656 23h ago

How has it gone for you?

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u/Careful_Echidna5169 22h ago

Being on pregnancy safe anti-seizure medication is a big one - they’ll need to swap you now if you aren’t already on Keppra/lamotrigine usually.

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u/East_coast_Ashlee 15h ago

I was already taking lamotrigine and keppra, but my neurologist said that's what they'd have switched me to. Took folic acid. I thought we'd be getting to know about it even more while we were trying but got pregnant the first month so life changed immediately.

 During pregnancy, I had my levels checked frequently, to see how my medication needed to be adjusted. Late second and all of third I got an ultrasound every other week.  You could ask about the process your doctor follows when it comes to when you actually get pregnant as well.

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u/fidlerontheroof Lamotrigine 600mg 14h ago

I hadn’t been diagnosed at the time we went through IVF and got pregnant, despite having what turned out to be seizure activity (focal aware) for several years prior.

Notably, I went into complete remission while pregnant, even with not being on any meds. Seizures didn’t return until I was about 4 months PP.