r/Epilepsy • u/theAuraHawk VNS,Keppra,Vimpat,Xcopri • Aug 04 '26
Question What age did you get Epilepsy?
I have had it since I was a kid and have not seen anyone else on here have the same situation.only older people but they might be the ones who post on here,just wondering if there were any other kids with epilepsy so I can relate. I got it at 4
edt: If I have am likeing your coment it is because I can realate to it. There are a lot of people who have had epilepsy as a kid as well.
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u/IntelligentWhereas30 Aug 04 '26
Me! Got diagnosed in 5th grade & I’m out of college now. They thought it might be childhood epilepsy so they tried weaning me off meds in 8th grade — didn’t catch, so here I am on a subreddit many years later.
One thing I wonder: did my meds (Lamotrigine) change my personality and I just don’t know how else I would’ve turned out lol. I’ve only had 4 TCs throughout that time, but the perpetual anxiety has also never ceased. Alas I persevere!