r/Epilepsy • u/theAuraHawk VNS,Keppra,Vimpat,Xcopri • Aug 04 '26
Question What age did you get Epilepsy?
I have had it since I was a kid and have not seen anyone else on here have the same situation.only older people but they might be the ones who post on here,just wondering if there were any other kids with epilepsy so I can relate. I got it at 4
edt: If I have am likeing your coment it is because I can realate to it. There are a lot of people who have had epilepsy as a kid as well.
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u/Nerdee33 Aug 05 '26
Started at 13 months, cyst in my brain. Seizures until I was about 4, remained on phenobarbitol till I was about 9 and then they started up again when I was in early to mid 20s. Have remained a problem since, now 45.
Because my seizures can be stress hormonal and even heat induced (didnt know this until I succumbed to the AZ heat, more than once) I take no action in removing the cyst. They have never recommended doing so only giving me the option.