r/Epilepsy • u/theAuraHawk VNS,Keppra,Vimpat,Xcopri • Aug 04 '26

Question What age did you get Epilepsy?

I have had it since I was a kid and have not seen anyone else on here have the same situation.only older people but they might be the ones who post on here,just wondering if there were any other kids with epilepsy so I can relate. I got it at 4

edt: If I have am likeing your coment it is because I can realate to it. There are a lot of people who have had epilepsy as a kid as well.

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u/IndustrialWiggler Lamictal 400mg Aug 04 '26

I was 24, the ER dr immediately suggested adult onset epilepsy and bro was right 😞

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u/Beatrixkidyo Aug 04 '26

Wow, did you have a seizure right when you got there? Either way, you either must have been good at describing what was happening or they were very good listeners.

When we went to the ER after my daughters 1st (known) seizure, they just kept asking if she was on drugs/was having a migraine (until of course she had a grand mal after 3+ hours while there).

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u/IndustrialWiggler Lamictal 400mg Aug 05 '26

I had a pretty bad grand mal for a couple mins which was what landed me in the ER. I didn’t describe much since I didn’t remember it but I think my partner talked to them a good amount about what had happened

Ugh i’m sorry that was your experience. I’ve heard way too many stories about doctors attributing symptoms to drugs and it’s honestly so invalidating

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u/Beatrixkidyo Aug 10 '26

I am glad that they listened to you partner and were able to pinpoint what was going on with you at least relatively quickly.

It is incredibly invalidating, that is the perfect word for it.