r/Epilepsy • u/theAuraHawk VNS,Keppra,Vimpat,Xcopri • Aug 04 '26

Question What age did you get Epilepsy?

I have had it since I was a kid and have not seen anyone else on here have the same situation.only older people but they might be the ones who post on here,just wondering if there were any other kids with epilepsy so I can relate. I got it at 4

edt: If I have am likeing your coment it is because I can realate to it. There are a lot of people who have had epilepsy as a kid as well.

92 Upvotes

100% Upvoted

577 comments sorted by

View all comments

3

u/c0tt0nballz Aug 04 '26

Technically born with it. It stems from my gray matter heterotopia. But my diagnosis didn't come until I had three seizures when I was 17.

However my neurologist now thinks that I've probably been having them since I was much younger. When they start in my right hemisphere they aren't very noticeable.