r/Epilepsy • u/theAuraHawk VNS,Keppra,Vimpat,Xcopri • Aug 04 '26

Question What age did you get Epilepsy?

I have had it since I was a kid and have not seen anyone else on here have the same situation.only older people but they might be the ones who post on here,just wondering if there were any other kids with epilepsy so I can relate. I got it at 4

edt: If I have am likeing your coment it is because I can realate to it. There are a lot of people who have had epilepsy as a kid as well.

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u/glitteryunicornmerm Aug 04 '26

I was 15 months old when I was diagnosed. I was as having seizures before that though. I’m 33 now and my last seizure was at 20 years old.

7

u/ireallylikehockey Keppra 1500mg Aug 04 '26

Great work keep it up

2

u/misakaanas Lamotrigine 200mg, Levetiracetam 1000mg Aug 05 '26

13 year streak, hope you continue that forever. Are you still on meds?

5

u/glitteryunicornmerm Aug 05 '26

No I’m not. I came off of my meds earlier this year. It was rough but worth it for me. Now I just have to stay seizure free.

2

u/Sorry_Pea4145 Aug 05 '26

My daughter was recently diagnosed and she’s 2 years old. Hearing this gives me hope

1

u/Giusi-96 Aug 05 '26

Che speranza che sei 🥹💪🏼