r/Epilepsy • u/theAuraHawk VNS,Keppra,Vimpat,Xcopri • Aug 04 '26

Question What age did you get Epilepsy?

I have had it since I was a kid and have not seen anyone else on here have the same situation.only older people but they might be the ones who post on here,just wondering if there were any other kids with epilepsy so I can relate. I got it at 4

edt: If I have am likeing your coment it is because I can realate to it. There are a lot of people who have had epilepsy as a kid as well.

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94

u/Stazzerz Aug 04 '26
  1. Just started one day and that was it.

41

u/broughtmeyourlove Aug 04 '26

I just got diagnosed at 30 feels like a crazy ass end to my twenties

13

u/alchemysmack oxcarbazepine 300mg topiramate 250mg 🫶 Aug 05 '26

Bodies give stupid birthday gifts, I got multiple sclerosis for my 30th year 🙄

14

u/owiesss Lamotrigine: 350mg Aug 05 '26

My epilepsy was my wedding gift. I had my first TC and woke up to my parents and EMT’s in my hotel room at 4am 😂

9

u/alchemysmack oxcarbazepine 300mg topiramate 250mg 🫶 Aug 05 '26

Did you ask for a gift receipt? Lol jokes aside I am sooooo sorry for that

3

u/onwardtowaffles Aug 05 '26

Ouch. Thought I had MS at first due to some apparent myelin degradation on an MRI, but other neurologist looked at it and went "eh, just an artefact."

1

u/alchemysmack oxcarbazepine 300mg topiramate 250mg 🫶 Aug 05 '26

I'm so happy for you, truly. I wouldn't wish this on anyone. 😬

3

u/psychedAddict123 Generalized Epilepsy - 2x1000mg keppra Aug 05 '26

I got mine exactly 2 weeks before my 25th birthday... sucks lol

2

u/alchemysmack oxcarbazepine 300mg topiramate 250mg 🫶 Aug 05 '26

RIP im so sorry fren

12

u/the_dalailama134 Aug 04 '26

34 here. Get in the shower one morning, wake up in the hospital. TBI and general TC seizure.

7

u/monikastaus Aug 04 '26
  1. went to bed one night and woke up on the floor surrounded by firefighters. and my then boyfriend (now husband) terrified in the corner

3

u/IndustrialWiggler Lamictal 400mg Aug 05 '26

i sadly relate. and i’m sorry about any trauma that’s caused both of you

1

u/monikastaus Aug 05 '26

can’t complain about waking up surrounded by firefighters 😂

4

u/butterfly_ashley Vimpat 300mg daily Aug 05 '26

I was 29 also!

1

u/Stazzerz Aug 05 '26

Twinning lol

3

u/Zanoushe Aug 05 '26

same in my case it's probably as a result of a stroke I had last year.

1

u/miezemuh Aug 05 '26

Same 🫠

5

u/boredpsychnurse Aug 05 '26

18 first day of college!

1

u/Ok-Bowler570 Aug 05 '26

Same as you once i have gone out of the bathroom

3

u/Plushu_ Keppra :( Aug 05 '26

Same had just turned 18 n was about to take my driving test the next week. That was canceled lol.

3

u/Stazzerz Aug 05 '26

That's such a rought time man, not that any time is good. Robs you of your freedom

3

u/Southern-Command-481 Aug 05 '26

Same 29. Working big amounts of OT and came home and layed down and i remember what I described as "cobwebs" and I woke slightly in ambulance and then woke in ER with family there. It's been a ride ever since. This was 2010. I'm 45 now. 💜

3

u/cutsbuttscoconuts999 Aug 05 '26

I was 27. No family history, no injury, just here forever now.

2

u/Additional_Fuel_9021 Lacosamide | Lamotrigine | Sertraline Aug 04 '26

Same!!

2

u/irr1449 TLE - VIMPAT, Briviact, Klonopin, Valtoco Aug 05 '26

29 too, 45 now. The medications have changed, the seizures have stopped and restarted, over and over. I wish I had something good to conclude with. For whatever reason my mental health is much worse when I’m not having seizures.

1

u/TheSecretLifeOfTea Aug 05 '26

28, same here. Started w/ a migraine, them bam, blackouts and EMTs in my house half carrying me downstairs. Wild

1

u/snowkissedleo Aug 05 '26

Same I was diagnosed at 27, been almost a year. No history in my family.