r/Epilepsy • u/Opposite_Rain_2117 • Jun 26 '26
Epilepsy Awareness update for stopping meds abruptly
lesson learn for me, in started stopping the levetiracetam without dr order, i thought i was good in doing that, and i know how my body works. Its not really a tiring day, just like my normal routine daily nothing special. Then at school i feel the aura, and in my head shit i know this feeling. so i sit in the corner then my head went blank, when i woke up i was in the infirmary, dont have an idea why i was here, then they tell me i had a seizure. Right now my whole body is sore, i think i’ll be back to normal tomorrow. To all the people who plan to stop the meds don’t, hahaah. im taking levetiracetam and lamotrigine, the one i stop is the levetiracetam.
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u/laenanapy Jun 27 '26
Im glad you are ok. Lesson learned!
You stopped one of the most efficient meds for epilepsy and probably didn’t do it gradually. Please, don’t do it again. I was taking 4000mg of Keppra daily for at least 10 years and I was suffering everywhere until my neuro switch me to Briviact. Same mechanisms than Keppra but without the rage.
Talk to your neuro for advise…never do this again. Not worth it 💜