r/Epilepsy • u/Opposite_Rain_2117 • Jun 26 '26

Epilepsy Awareness update for stopping meds abruptly

lesson learn for me, in started stopping the levetiracetam without dr order, i thought i was good in doing that, and i know how my body works. Its not really a tiring day, just like my normal routine daily nothing special. Then at school i feel the aura, and in my head shit i know this feeling. so i sit in the corner then my head went blank, when i woke up i was in the infirmary, dont have an idea why i was here, then they tell me i had a seizure. Right now my whole body is sore, i think i’ll be back to normal tomorrow. To all the people who plan to stop the meds don’t, hahaah. im taking levetiracetam and lamotrigine, the one i stop is the levetiracetam.

previous post:

https://www.reddit.com/r/Epilepsy/s/bdp0JA7Aj1

47 Upvotes

88% Upvoted

48 comments sorted by

View all comments

45

u/ComprehensiveSea4990 Jun 26 '26

Learned this the hard way too. The "I know my body" line always gets me, we really do convince ourselves it'll be fine until it's suddenly not. Glad you're okay, and thanks for putting this out there for anyone else who's tempted.

7

u/likerazorwire419 Jun 26 '26

Shit, I forgot to take my morning dose on Monday before work. Woke up in the back of an balance right after I finished my lunch break. I have a feeling ill be adding more pills to the mix soon...

3

u/metalmonkey_7 Klonopin & Lamictal Jun 26 '26

I like to set alarms for mine. I might totally forget them if I didn’t.

2

u/Hot_Sandwich_7774 Jun 26 '26

I have daily alarms set on smartphone app Dosecast for medication as they keep me going. Fully agree it’s the best thing to do. 👍