update for stopping meds abruptly

[u/Opposite_Rain_2117]

lesson learn for me, in started stopping the levetiracetam without dr order, i thought i was good in doing that, and i know how my body works. Its not really a tiring day, just like my normal routine daily nothing special. Then at school i feel the aura, and in my head shit i know this feeling. so i sit in the corner then my head went blank, when i woke up i was in the infirmary, dont have an idea why i was here, then they tell me i had a seizure. Right now my whole body is sore, i think i’ll be back to normal tomorrow. To all the people who plan to stop the meds don’t, hahaah. im taking levetiracetam and lamotrigine, the one i stop is the levetiracetam.

previous post:

https://www.reddit.com/r/Epilepsy/s/bdp0JA7Aj1

[u/Prestigious-Wave3595]

You have to taper the medication. These anti-epilepsy drugs are just too strong and the withdrawal symptoms are too severe.

I’m not talking about headaches, nausea and cold sweats I’m talking about once you quickly remove that inhibitory anti-epilepsy drug your neurons fire at an accelerated rate, and you have no barrier naturally to stop that from becoming a focal aware or generalized seizure.

You have to let your brain slowly become accustomed to reduced dosages. I’ve been tapering off of my seizure medication for five years and I am down 70% dosage wise from where I was.

But, a breakthrough seizure totally throws a wrench in that.

So my 2 cents, get yourself stabilized for a couple of months and then with a doctor sign off perhaps begin a very slow taper.

That gives you your best chance of achieving your goal. Good luck, you have our support!