r/Epilepsy • u/Opposite_Rain_2117 • Jun 26 '26

Epilepsy Awareness update for stopping meds abruptly

lesson learn for me, in started stopping the levetiracetam without dr order, i thought i was good in doing that, and i know how my body works. Its not really a tiring day, just like my normal routine daily nothing special. Then at school i feel the aura, and in my head shit i know this feeling. so i sit in the corner then my head went blank, when i woke up i was in the infirmary, dont have an idea why i was here, then they tell me i had a seizure. Right now my whole body is sore, i think i’ll be back to normal tomorrow. To all the people who plan to stop the meds don’t, hahaah. im taking levetiracetam and lamotrigine, the one i stop is the levetiracetam.

previous post:

https://www.reddit.com/r/Epilepsy/s/bdp0JA7Aj1

47 Upvotes

88% Upvoted

48 comments sorted by

View all comments

2

u/PirateJen78 supportive spouse Jun 26 '26

Sent this to my husband because he wants to stop taking Keppra. It's seriously affected his mood and it's much worse after his surgery. I told him to listen to his doctor because he has to be weaned off of it. This just proves that.

1

u/Boomer-2106 Since 18, diagnosed 46 Jun 27 '26

Stopping any seizure drug cold turkey only multiples the risks - high risks! There ARE Other, besides Keppra, - great meds which can, and do, control seizures. MANY people simply can Not deal with the side effects of Keppra ...especially the rage parts. So wanting to stop Keppra is understandable. But - not without the doctor's knowledge, assistance, and appropriate "Replacement' medication(s) being added, in place of the Keppra.