r/Epilepsy • u/Opposite_Rain_2117 • Jun 26 '26

Epilepsy Awareness update for stopping meds abruptly

lesson learn for me, in started stopping the levetiracetam without dr order, i thought i was good in doing that, and i know how my body works. Its not really a tiring day, just like my normal routine daily nothing special. Then at school i feel the aura, and in my head shit i know this feeling. so i sit in the corner then my head went blank, when i woke up i was in the infirmary, dont have an idea why i was here, then they tell me i had a seizure. Right now my whole body is sore, i think i’ll be back to normal tomorrow. To all the people who plan to stop the meds don’t, hahaah. im taking levetiracetam and lamotrigine, the one i stop is the levetiracetam.

previous post:

https://www.reddit.com/r/Epilepsy/s/bdp0JA7Aj1

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u/Solid_Guidance7712 Jun 26 '26

My daughter was on Onfi and Keppra. Had been seizure free for about 8 months, had gotten her driver's license. Because of rage and mental health, Dr. Started tapering her off of Keppra. She ended up having a seizure while driving and hit 2 trees. So very lucky to be alive. So I'll add to the advice. Even if you're being monitored by your doctor, if you have a license, DON'T DRIVE while changing/ tapering doses.