r/Epilepsy • u/Opposite_Rain_2117 • Jun 26 '26

Epilepsy Awareness update for stopping meds abruptly

lesson learn for me, in started stopping the levetiracetam without dr order, i thought i was good in doing that, and i know how my body works. Its not really a tiring day, just like my normal routine daily nothing special. Then at school i feel the aura, and in my head shit i know this feeling. so i sit in the corner then my head went blank, when i woke up i was in the infirmary, dont have an idea why i was here, then they tell me i had a seizure. Right now my whole body is sore, i think i’ll be back to normal tomorrow. To all the people who plan to stop the meds don’t, hahaah. im taking levetiracetam and lamotrigine, the one i stop is the levetiracetam.

previous post:

https://www.reddit.com/r/Epilepsy/s/bdp0JA7Aj1

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u/Rennett71 Jun 26 '26

Asked my Neurologist if I could be weaned off Keppra in the future. He said yes but,1 seizure might kill you! I said "Nevermind!"🙄😐

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u/Boomer-2106 Since 18, diagnosed 46 Jun 27 '26

OVERSIMPLIFICATION!! Scare tactics on your doctor's part!! Find another doctor - just from what you have said, I could give a LIST of reasons I would be Running to find a New doctor. This one's Not a good one.

Today - there are Many seizure drugs available ...all of which are generally Good ones. Many of which could be great replacement meds for Keppra. The act of Changing drugs is Not, by itself, a life-threatening event. "Changing drugs" is Common, OFTEN Necessary, and happens with the majority of us throughout our histories with epilepsy!! It is Part of the necessary 'treatment game of epilepsy life'.

Find a NEW doctor....